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Hello everyone , my name is Laurel Pourboghrat fundraising for my sweet granddaughter Scarlett Rose Pourboghrat who is 5 months old.
During the first week of December 2022 baby Scarlett started experiencing some unusual body movements, her parents (Tavon Pourboghrat & Ashley Garrido) were very concerned and sought immediate medical help . Unfortunately, Scarlett was misdiagnosed with Sandifers syndrome.
Mom and Dad knew something else was wrong and pushed for a neurologist consultation… they had to wait a very long month to finally be seen. On January 18th , Scarlett was taken to pediatric neurology specialists in Las Vegas, Nevada for a 6 hour EEG. It was there that Scarlett was diagnosed with infantile spasms (infant epilepsy).
We were all devastated but remain hopeful that she will recover soon. Scarlett has undergone a steroid treatment in Sunrise Children’s hospital but after a few days she seemed to get worse. Her parents fought to have her reevaluated but the on call neurologist wanted to start her on ACTH (a very aggressive drug with concerning side effects ).
Ashley, Tavon and family members started researching and discovered that UCLA has an excellent program that specializes in infantile spasms. They wanted to get a second opinion and Without hesitation, Scarlett’s parents and grandmothers drove to UCLA. Thankfully Scarlett was admitted right away. UCLA conducted a 24-hour EEG and quickly pushed for a very rapid and aggressive treatment with an increase dosage of steroids along with an introduction of vigabatrin. Our hearts just know that this treatment will work because the staff at UCLA has successfully treated these cases before .
Currently, Scarlett is still admitted in the PICU at UCLA’s Mattel Children’s Hospital . Because we are out of state residents Scarlett does not qualify for medical assistance in California. The treatment is incredibly costly and Scarlett’s parents are expected to pay out of pocket . For a 48 hour stay we have been told we will need to pay up to $88,733.34. This is just for the UCLA visit, not accounting for continued treatment and medication.
We have explored every avenue that we knew to get help with the finances but have not been able to find anything. We kindly ask that you please help us financially and most importantly keep Scarlett in your prayers.
Once Scarlett is discharged we are planning to go back to Las Vegas, NV to continue treatment under the supervision of UCLA.
We have faith God will hear our prayers and keep our perfect little angel healthy and safe.
During the first week of December 2022 baby Scarlett started experiencing some unusual body movements, her parents (Tavon Pourboghrat & Ashley Garrido) were very concerned and sought immediate medical help . Unfortunately, Scarlett was misdiagnosed with Sandifers syndrome.
Mom and Dad knew something else was wrong and pushed for a neurologist consultation… they had to wait a very long month to finally be seen. On January 18th , Scarlett was taken to pediatric neurology specialists in Las Vegas, Nevada for a 6 hour EEG. It was there that Scarlett was diagnosed with infantile spasms (infant epilepsy).
We were all devastated but remain hopeful that she will recover soon. Scarlett has undergone a steroid treatment in Sunrise Children’s hospital but after a few days she seemed to get worse. Her parents fought to have her reevaluated but the on call neurologist wanted to start her on ACTH (a very aggressive drug with concerning side effects ).
Ashley, Tavon and family members started researching and discovered that UCLA has an excellent program that specializes in infantile spasms. They wanted to get a second opinion and Without hesitation, Scarlett’s parents and grandmothers drove to UCLA. Thankfully Scarlett was admitted right away. UCLA conducted a 24-hour EEG and quickly pushed for a very rapid and aggressive treatment with an increase dosage of steroids along with an introduction of vigabatrin. Our hearts just know that this treatment will work because the staff at UCLA has successfully treated these cases before .
Currently, Scarlett is still admitted in the PICU at UCLA’s Mattel Children’s Hospital . Because we are out of state residents Scarlett does not qualify for medical assistance in California. The treatment is incredibly costly and Scarlett’s parents are expected to pay out of pocket . For a 48 hour stay we have been told we will need to pay up to $88,733.34. This is just for the UCLA visit, not accounting for continued treatment and medication.
We have explored every avenue that we knew to get help with the finances but have not been able to find anything. We kindly ask that you please help us financially and most importantly keep Scarlett in your prayers.
Once Scarlett is discharged we are planning to go back to Las Vegas, NV to continue treatment under the supervision of UCLA.
We have faith God will hear our prayers and keep our perfect little angel healthy and safe.
Organizer and beneficiary
Ashley Garrido
Beneficiary