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Thanks for taking a look at my story.
You may have seen my story on the NEWS or Instagram.
I'm mostly Known for my online art & Fantasy Animal webcomic "Framed But Not Broken" as online persona @packoi comics
The subclavian artery & major nerve bundle running from my neck down to my arm are being crushed between my first rib and collarbone.
Losing My Right Arm
Ive been an artist since I could hold a paintbrush.
At first the pain started small which I could ignore. But over the past five years, it's been spreading down my neck and arm until I lost control of my hand.
I saw countless doctors and specialists over the years. I was told they can't figure out what is causing me pain & nothing can be done. I was constantly being told "it's just anxiety!" "It's all in my head" and "you are just too sensitive"
Having Ehlers Danlos Syndrome (EDS) my entire life, I haven't known a day without pain. So doctors just attributed my pain to it.
So with nobody who could help me, I had no choice but to keep working through the pain ...But...
6 weeks ago it developed into unbearable agony.
I started to drop things and experience shooting pains. I'd lose strength, and my arm would become tingly and numb and swell up.
I knew it was serious when I couldn't hold a pen anymore. Or click a computer mouse.
I had to temporarily quit working from my job as a Creative Lead & Photographer.
This pushed me to seek more opinions.
I saw over 10 neurologists and 3 orthopedic surgeons before I got an answer. I felt hopeless. Each one telling me i was beyond their scope.
Until a Vascular Surgeon discovered "Significant Subclavian Artery Compression" where all the major nerves running from my neck down to my hand are being crushed between my first rib and collarbone.
When I move my arm, the artery gets squeezed shut or between the first rib and collarbone and stops bloodflow.
Less than 1% of Thoracic Outlet Patients have Vascular compression, and it is the most dangerous version.
In extreme cases, if left untreated can lead to life-threatening blood clots, Pulmonary embolisms, Aneurysms, Strokes, Permanent functional damage and loss of a limb.
... He is the only surgeon in my area experienced with this complex condition and willing to operate on a high-risk Ehlers-Danlos patient.
The Surgery That Can Change Everything
This surgery involves removing my first rib along with the anterior and medial scalenes, to restore the function in my right arm. It’s a highly specialised and life-changing operation, and after years of being told nothing can be done.
I’ve done everything in my power to fight this, years of physiotherapy, water therapy, dry needling, remedial massage, strength training.
This is my last chance. And I am desperate for the pain to stop.
Asking for help has been a difficult step for me and still is, as I have always managed on my own.
However, I now find myself needing financial support because insurance won't cover it as it's classed as a "pre-existing condition" and there are only private doctors who can perform this surgery.
The Grand Goal is
$20,000.00(AUD) / 13,000.00(USD)
Which will be broken up into smaller milestones that will go towards surgery, medication, hospital stay and rehabilitation.
Every donation will go directly towards medical related costs.
I know the goal sounds big...
Please don't feel like you would have to donate a large amount.
Small donations are very welcomed.
If you can donate no more than the minimum then please know and accept my deepest gratitude.
And If you can’t donate, sharing my story is just as powerful.
✨ You can help save my future as an artist.
✨ You can give me back the use of my right arm.
✨ You can help me reclaim my independence, my art, and my life.
Without surgery
• I’ve continue to lose the function of my dominant arm, the one I need to paint, to photograph, to work, and to take care of myself.
• I will get nerve damage over time
• I’m in severe daily pain and struggle to cope with the neurological pain.
I thought my future as an artist was over. But now I've been told I have a chance to get it back
From the bottom of my heart, thank you for reading, for supporting, and for helping me hold on to hope.
I have much more to share with this world. To draw again without pain would be a dream come true.
— Dayna





