(03-October-2025) Update: We successfully have reached the milestone. Thanks to everyone who supported!

*** Original Message ***

Hi,

My name is Kavin, and I’m writing this not for myself, but for someone I care about deeply — my closest friend Ronak Daxini, and his 8-month-old daughter Siya.

Siya was born in November 2024, and like any other baby, she brought pure joy and endless dreams to her parents' lives. But just a few months in, those dreams began to slip away. At 6 months of age, Siya was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 — a rare and cruel genetic disease that slowly takes away a baby’s ability to move, swallow, and eventually breathe.

Without treatment, most children with SMA Type 1 don’t live beyond their second birthday.

But there is one hope: a one-time gene therapy called Zolgensma — the world’s most expensive medicine. It can halt the disease and even reverse some of the damage, but only if administered early.

The cost? ₹9 Crore — approximately $1.08 million USD or €990,000 EUR. An unimaginable amount for any family. But they are fighting with everything they have.

So far, thanks to incredible community support, $252,000 (₹2.1 Crores / €231,000) has been raised. But we still have a long way to go — $831,000 (~€759,000) to give Siya the only chance she has.

Also check: https://www.helpsiya.com/

This is more than a fundraiser. This is a plea from one friend to the world:

Please help us save Siya’s life.

Whether it’s a donation, a share, or simply spreading the word — every action matters. You could be the reason this little girl lives to take her first steps, speak her first words, and grow up surrounded by love.

With heartfelt gratitude,

Kavin

(On behalf of Ronak, Khyati, and baby Siya)