Dear Friends and Family,

As many of you know, my mother is currently struggling with late stage Chronic Neurological Lyme Disease. Those of you that already know this mostly likely understand the horrible battle my mom has been facing. She has remained strong, trying to receive help from her doctors to no avail. Her medical provider has been completely negligent in my mothers care. The suffering she is experiencing is inhumane and we can no longer sit by and watch while her medical providers drag their feet. She has been waiting over two months for pain relief. The disease has left her completely debilitated. She can no longer sit or walk without extreme levels of pain. She is suffering from POTS, where she is completely out of breath and her heart rate jumps up to 140 walking from her bedroom to the kitchen. Lyme carditis(when Lyme disease bacteria enter the tissues of the heart) is a life threatening condition. Brain fog, double vision, extreme fatigue, tingling in feet, hand tremors, severe weight loss, and the worst of all constant/relentless severe burning nerve pain in the pelvic area.

This disease has taken a toll not only on her physical health, but her mental health as well. Once an active independent single mom of a young teenage daughter and four dogs, she has lost every aspect of her previous life in every way. She is bedridden and unable to work. The lack of relief from this disease has left her with crippling anxiety and depression. She suffers from anxiety attacks every morning due to the relentless pain and lack of sleep.

She needs to be seen by a Lyme literate doctor. Her medical provider remains a reckless bystander. They refuse to treat or even acknowledge chronic Lyme disease despite all the evidence that chronic Lyme is real and prevalent. The only thing her medical provider has done is refer her to pain management. It has been over two months now and she still has not found any pain relief and has only been able to be seen once by pain management. Her primary care doctor openly admits that chronic Lyme is beyond her scope but has not referred us to any other specialists.

The neglect my mom is receiving from her medical provider has put us in an impossible situation. We now have to go outside of her medical provider whom she has insurance with and try to find a Lyme literate doctor. Lyme treatment (as is all medical treatment in the US) is extremely costly due to the fact that we would have to pay completely out of pocket. However we are already struggling financially to provide for basic needs and not end up losing our home and becoming homeless. She can no longer work and has been surviving off temporary disability and the minimal financial support I (her 25 year old daughter) can provide while also being her primary caregiver.

Within a matter of days, my mom went from living her normal happy life, to becoming bedridden. She lost 40lbs within the first month. My mother needs help NOW!

My mom is known and loved by many for the light that she brings into other people's lives. Those that know her know what a kind, loving, selfless, and generous woman she is. She constantly goes out of her way to help others. She is a kind and gentle soul and has given so much of herself to those around her. It’s now time that she needs the same care and support back in her most desperate time. She deserves proper treatment from a doctor that understands the complexity of chronic Lyme. No person should have to suffer in silence the way she has been for the last 3 months.

I fear that at the rapid rate that her health has been declining, if she doesn’t start to receive adequate treatment, we are going to lose her. My mother has so much more life to live and has a young daughter to raise. She needs our help whether that be through donations or even a simple share.

Please help us get my moms life back.

My Mothers words on what it has been like to live with this debilitating disease:

“Fighting with no voice only silences the desperate screams of the suffering I feel every second of the day- complete despair.

I have been fighting for help with no understanding of the severity of the burning nerve pain I am living in, and being left to literally suffer levels of pain that are inhumane and barbaric. Unlivable pain is truly crushing me.

My family and friends have made desperate attempts for help as well only to be left feeling helpless. My kids and family watch the tears and pain of complete agony every day as I pass out from exhaustion to wake up and start over again. They are so helpless and in horror as they hold me while I shake in agony.

I wouldn’t be here without them today in all honesty.

I am a single mother that can no longer work fighting to get proper medical treatment I so desperately need.

The symptoms pushing me past my breaking point are what feels like 3rd degree burns with acid on them in the pelvic area. All externally, I can’t sit, tolerate clothing, water on my skin feels like glass shards and stings like exposed burns with alcohol poured on them. Adrenaline running day and night to put out the fire that can’t be put out. Every move I make is agonizing torture. All I know is I cannot physically or mentally handle this without proper medical help and pain management.

Thank you to everyone praying and that has reached out personally. Some messages and songs of hope have come in times of despair which turned my eyes back to the light.

I know my posts have been concerning for some who know me, who know the happy me, but I am speaking the honest truth of this horrible disease and what it does. This is my truth…

It shreds apart the soul of a person who has so much zest and love for life , family and friends. Now a shell of myself , down 40 lbs in a month, In a body that is literally in crisis. I am losing this fight.

I hope someone takes the lead on this and will rally the medical system to understand what Lyme does to a person individually , and it’s complete destruction when it’s not taken seriously. Chronic Lyme exists.”

If anyone recommends a Lyme literate doctor in the greater Sacramento area CA, please feel free to contact me through GoFundMe.