Help Sapo & Lorena care for Nauê
Our hero, Nauê, is in the hospital in critical condition - Sapo and Lorena need our support now, more than ever, so they can focus on caring and advocating for him!
Nauê has a rare genetic condition called IFAP syndrome. One of the biggest risks to children with IFAP is skin infection, and bacteria entering their blood system. This is what Nauê is fighting right now.
Because IFAP is so rare, doctors struggle to understand the complexity of his symptoms. IFAP's complications make feeding, hydrating, going to the bathroom, administering IVs, and providing pain relief extremely difficult. Nauê has been a soldier, fighting bravely through terrible discomfort.
As you can imagine, it takes all of Sapo and Lorena's strength and energy to stay present and positive as they navigate this difficult and dangerous time for their family. Their hope is that Nauê improves enough so they can care for him at home where he feels safe and connected. They have been at the hospital 24/7 for over two weeks now. Neither of them have the benefit of paid leave from their work during this crisis - we are calling on the community and anyone who has seen their story to help them.
More than parents, Sapo and Lorena are Nauê's best caregivers and advocates. They have become nurses and researchers, finding effective treatments for his skin condition, among other things. Having reached the limits of specialization available at the hospital, they now have to seek care in the private system. Nauê needs a wound specialist to provide him pain relief and help his skin recover, and treatments to prevent future bacteria infections and avoid the crisis and trauma of another extended hospital stay.
Your contributions will cover Sapo and Lorena's lost income while in hospital, help pay for bills and living expenses, and create a medical care fund for Nauê's discharge and private skin care specialists.
Please pray for Nauê's speedy recovery, Sapo and Lorena's strength, and if you can - donate generously to this campaign.
Thank you,
Maya, Kate & Gina
** Nauê's father Gerdson 'Sapo' Dias Alves is the sole beneficiary of this campaign. **
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For those who haven't seen it, this is a short film about the beautiful and inspiring family we are here to support:
