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Help 8 yr old Ruhi Fight a Rare & Life-Altering Brain Tumor

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Update : Recently we visited Ruhi and our family in India. With all your blessings and support, Ruhi is stable for now. She is getting chemotherapy on a weekly basis. Per doctor, they will do MRI later this month and based on the MRI results, the doctor will provide more updates. We are hoping and praying that there will be improvements.
Please continue to keep Ruhi in your prayers. Thanks everyone for your support.


Dear friends and family,

We are reaching out to you with heavy hearts to share the story of our beloved 8-year-old niece / sister - Ruhi Shah (living in India), who has recently been diagnosed with a rare and life-threatening condition: Diffuse Leptomeningeal Glioneuronal Tumor (DLGNT).

Ruhi is an incredibly smart, active, and kind girl whose warmth and energy lights up every room. She has always been full of life, with a deep love for learning and a big heart for helping others.

But now, this bright little girl is facing an unimaginable battle. DLGNT, a rare tumor that only gained recognition in 2016, has spread from the back of her brain through her spine. This type of tumor is so rare that there is no standardized treatment protocol, and very little research has been done worldwide—let alone in India. The rarity and complexity of her condition make her treatment plan all the more challenging.

Currently, Ruhi is undergoing treatment at the renowned Tata Memorial Centre in Mumbai under a leading pediatric oncologist. The doctors have recommended a combination of chemotherapy, targeted therapy, or radiotherapy to give her the best possible chance. However, this treatment journey will be long, physically and emotionally exhausting, and financially overwhelming.

Why We Need Your Help?

The cost of Ruhi's treatment, including medications, hospital stays, travel and ongoing care, is significant. Her family has already exhausted many of their resources, and the road ahead is daunting. The emotional and financial strain on her parents is immense, and they need our collective support to ensure Ruhi gets the care she desperately needs.

How You Can Make a Difference -

- Donate: Any contribution, no matter how big or small, will directly go toward covering Ruhi’s medical expenses, including chemotherapy, therapies, doctor consultations, hospital bills, and necessary travel.

- Share: Please share this fundraiser on social media and with your network. The more people who know about Ruhi’s story, the more support we can gather to help her.

- Send Your Prayers for Ruhi's speedy recovery!

Ruhi’s Courage Inspires Us All -

Despite the tremendous challenges she faces, Ruhi’s spirit remains unbroken. She is a fighter - courageous, brave, and full of hope. Ruhi's strength has inspired everyone around her, and we are determined to support her in every way possible.

We believe that with your help, Ruhi can overcome this rare disease and continue to live a healthy, happy life full of opportunities. Together, we can give her the fighting chance she deserves.

We humbly ask for your support—financially, emotionally, and through sharing her story. Thank you for standing with Ruhi and all of us in our time of need.

With love and gratitude,
Ruhi's Family
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    Organizer

    Mitesh Shah
    Organizer
    Bartlett, IL

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