Dear Friends, Family, and Kind Supporters,

We are reaching out with love and hope for our daughter, Riley, who is bravely facing a very rare genetic disorder known as PIGT-CDG (Congenital Disorders of Glycosylation). This condition presents a range of challenges, including seizures, hypotonia, kidney issues, and developmental delays. Despite these struggles, Riley remains a beacon of light in our lives. Her infectious smile and joyful laughter brighten every room she enters, and she continues to inspire us all with her resilience.

As her parents, we are constantly seeking ways to improve Riley’s quality of life and provide her with the best possible care. Managing her seizures has become one of our most urgent priorities. We are reaching out to raise funds for a seizure alert dog—a life-saving companion that will not only alert us to oncoming seizures, but also offer vital support during those critical moments.

A seizure alert dog is trained to detect changes in Riley's body before a seizure occurs, giving us the crucial time to respond. This early warning can be the difference between a seizure that is managed safely and one that becomes more dangerous. In addition to its life-saving role, the bond between Riley and the dog will provide her with comfort, security, and a sense of independence as she grows. The dog will also be a constant source of companionship, easing the emotional toll that living with a chronic condition can have on Riley.

The cost of acquiring, training, and caring for a specialized seizure alert dog is significant, and that’s why we are turning to our community for support. Your generosity can help provide Riley with this life-changing resource. Any contribution, no matter the size, will bring us one step closer to securing this essential companion for her safety and well-being.

We also ask for your help in spreading awareness of PIGT-CDG. Whether or not you are able to contribute financially, raising awareness is just as important as raising funds. Sharing Riley’s story can help bring more attention to this rare condition and the needs of families like ours.

From the bottom of our hearts, thank you for your support, love, and encouragement. Your kindness is making a world of difference in Riley’s life.

With heartfelt gratitude,

The Spry Family