Hi everyone, 

 I am taking in the Great South Run (10 mile  run ) to raise money and awareness in aid for a charity called (RTS ) Rubinstein-Taybi Syndrome Support Group. 

Most of you will have never heard of RTS as it is an extremely rare disorder. It’s so rare that currently no two cases are the same. The reason I have chosen this charity and why it has a special place is my heart is because my girlfriends niece was diagnosed with this disorder. It’s been hard for their family not knowing what each year will bring or if she will meet her milestones each year. She is currently 5 years old and has reached most milestones: crawling, walking, however she is yet to talk.

This charity offers support to families affected by Rubinstein-Taybi Syndrome (RTS). It helps raise awareness of RTS amongst the medical community and the general population. In order to support families they provide information about RTS (especially useful to families who have just received a diagnosis), social activities, medical and policy developments etc. arrange regular social family get-together days and weekends organise larger scale conferences and learning and support events. 

My aim is to raise as much money as possible, so please share this with your friends and family. 

Tommy x