Please Help Blake Talk with communication aide

Hi I am lill and i are fundraising for a very special little girl who has an incredibly rare condition.

HNRNPH2 is an incredibly rare condition affecting less than 80 people worldwide, that's 80 out of 7 billion!!

Blake is a gorgeous little girl who has this condition. It affects her brain, her heart and her mobility among other things. Blake has an amazing loving family and loads of people who love her.

But blake needs certain specialised aides and toys to help her as she grows. Like all babies she is growing up fast she wants to communicate with people around her she wants to play like all kids do. So I am raising money to buy blake things she needs now and things she will need in the future.

Right now she wants to tell her mom she loves her!

So I need your help! Please will u spare a few quid to help us buy a communication sounds board for blake?

With aac sound board communication/ eye gazer device ( like the device the incredible Steven hawking had that tracks the eye movement and facial twitches) blake can tell her mom she wants food (she is unable to drink fluids), or she wants to play

Blake could tell her mom when she has a sore tummy or that she is scared.(she has a high
startle reflex like a new born and anxiety as part of the condition) 

She can tell her mom and dad she loves them!

Can u imagine never hearing your child say
those words? Can u imagine not being able to say those words? We want to help blake to
do things she may otherwise not be able to
do.

So please give what u can and please share
our cause.

I'm also raising money to fund research into HNRNPH2 so whatever u can give please do.

Thank u all

From Lill, and Blake's X Gene Team