
Help Piper get through her fight against cancer
Donation protected
Story update:
Following the most recent end of treatment scan and the latest information and guidance we have received from Piper's consultants, any further money raised now will be used to make special memories with Piper and to fund second opinions from overseas professionals, to see if there are any options outside of the NHS that we could try.
Original post:
July 2022 Piper was diagnosed with cancer at just 3.5 years old. The cancer was in both her kidneys, her liver, up her IVC and taking up 3/4 of her right atrium.
Piper went through major surgery lasting 11 hours to remove her right kidney and the tumour in her main vein to her heart and from her heart. Surgery went well but histology came back that Piper had a rare aggressive form of Wilms, a childhood kidney cancer, called diffused anaplastic Wilms.
Piper has endured countless rounds of chemo, 3 weeks of radiotherapy, further surgery and many other procedures and hospital stays as a result of her diagnosis. In August 2023 Piper had her end of treatment scan, we were excited for her to start school in September and start having a normal childhood, but unfortunately her cancer is so aggressive it was already back in her liver, whilst still on chemotherapy and to an area that had received radiotherapy.
Piper has since had surgery removing the right half of her liver and her gallbladder and further chemo and a failed bone marrow harvest, which is virtually unheard of, her body is just so tired from all the aggressive treatment she's received to date.
During the last 2 months Piper has struggled to keep down any feeds and has had no appetite at all, after weeks of sickness and hospital stays and many trials of different feeds we could give Piper, we have finally found one that suits her, unfortunately it is only available in America, it's called Nourish pediatric peptide and costs circa £250 for 12 days worth, plus £130 delivery and £70 customs duty, which just isn't sustainable, but with Piper about to go into her high dose chemo (assuming the second bone marrow harvest attempt is a success) we know she is going to be very very poorly for an extended period of time, therefore we need to keep her strength up and we know this feed helps her to do that.
Feed to cover the expected 8 weeks recovery following the high dose chemo would cost circa £4,000, which is why we are hoping we can raise some money towards this to help keep pipers strength up during her recovery, ultimately giving her a better chance of recovering and being able to fight this nasty disease that has consumed her childhood.
Thank you from the bottom of our hearts for any contribution, it really means a lot to us.
Organizer
Nicola Storar-Richards
Organizer