HELP TOBY TALK! Pioneering neurological treatment in Mexico
Hello! Our fundraising is for our incredible 11-year-old son Toby, who has a life changing opportunity to travel to Mexico for groundbreaking treatment.
Toby has a rare genetic disorder called Syngap1, a gene mutation that leaves him non-verbal, with a severe learning disability, and challenging behavior. He’s also incontinent and under observation for absent seizures. Despite these challenges, Toby is a joyful, funny, loving boy who adores the Blackpool Tower, the circus, fireworks, music, and flashing lights . He loves to happy flap and jump while watching his favorite YouTube videos. Toby can say Mama, Dada, Nana, and Yeah, and he knows all the letters of the alphabet. He can spell his name but struggles to blend sounds into words or say his name aloud. His desire to talk shines through as he tries so hard.
We recently learned about a pioneering treatment and connected with a neurologist in Mexico from NeuroCytonix, a cutting-edge medical technology company. Yesterday, we received the most amazing email: after reviewing Toby’s medical history and diagnosis, they’ve approved him for treatment! We’re over the moon! This Cytotron machine-based therapy could transform his life. In the UK, the NHS uses Cytotron machines for cancer treatment, but NeuroCytonix, founded by J. Roberto Trujillo, M.D., Sc.D. from Harvard University, focuses on neurological diseases like cerebral palsy, stroke, and traumatic brain injuries. More importantly they’ve treated around 10 children with GENE MUTATIONS like Toby’s, seeing very promising results including SPEECH! The treatment is non-invasive with no side effects, and we’re desperate to give Toby this chance. We are determined to embrace the unknown with this revolutionary medical breakthrough therapy!
Sadly, the cost is beyond our means. We need to fundraise £45k to cover the treatment, flights, and accommodation for a 32-day stay in Mexico. Toby’s wonderful siblings Zach, Beth, Isobel, and Abi are organising sponsored events (details to follow!), and we’re working hard to raise awareness for sponsorship. If you can help in any way by donating or sharing our story we’d be forever thankful. We are sharing our journey not only to raise money but also to inspire hope for struggling families devoted to their special children.
Please, please, please spread the word about Toby’s journey.
Many thanks
Helen, Craig & family
Social Media :
Fundraising page:
https://www.facebook.com/share/1653zLfiz5/
Old Facebook account:
https://www.facebook.com/share/1VDtNMy9dx/
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