We are raising £23,000 to help Pete access urgent specialist medical investigations and treatment for severe chronic pain and neurological symptoms that have recently escalated beyond what we can manage alone.

Pete has lived with intense physical pain for most of his life, but over the past year his condition has become dramatically worse and deeply destabilising. We now urgently need advanced medical testing, specialist consultations and integrative treatment that are not available through the NHS.

Your support will help fund diagnostic imaging, neurological and pain specialist assessments, functional medicine testing and trauma-informed therapies so that Pete finally has a chance to understand what is happening in his body and begin a real path toward healing.

Hi it is Kalindi here…

I am reaching out to our community of friends, family, people we have worked with and anyone who has been touched by Pete’s warmth, humour, wisdom or work because the pain he has carried for most of his life has now reached a point where his strength alone is no longer enough. He continues to show up to the world with courage and generosity, but behind closed doors he is struggling more than ever before, and we cannot manage this without real help.

Pete has lived with chronic pain for as long as he can remember. Since the age of five, following multiple injuries and traumatic events, his body has held tension and trauma in ways that most people never see.

Day to day Pete’s symptoms have been becoming increasingly stronger and this past year things have taken a drastic turn. His body pain has become unbearable, he often describes it as “a knife constantly twisting, stabbing and tearing in different places.” The pain and bloating in his digestive system has never responded to any treatment nor diet, not even a 30 day water fast. Some of his muscles no longer release at all, they are like steel cables locked in place creating burning and tearing like pains in his buttocks, hip, sacrum, all the way up the right hands side of his spine between his shoulder blades, up into his neck and into his head. Recently he was told through another scan that he has a 6cm cyst in his kidney. In the privacy of our home, his energy fades and his resilience, although extraordinary, has worn very thin. You would not witness this when he is out and about as he has incredible energy and resolve and shows very little of his pain to the world. To minimise the pain, he has to keep moving on the go all of the time, stopping in any one position brings cramping. But also movement often exacerbates his pain - so neither rest nor exercise provide respite.

For over five decades he has managed it with hundreds of different treatments, awareness, humour, compassion, some really crazy practices and sheer inner strength - pain killers don't work on him.

Many of you know Pete as someone who shows up with warmth, wisdom and positivity and often timeless silliness! and most of the time people don’t realise just how much pain he is in, every moment of every day. It is the first thing he is aware of in the morning and the last thing at night, often keeping him awake, in a painful half-sleep or waking him with body cramps.

Living with Pete and watching him quietly wither under the weight of this pain is heartbreaking. He hides it well, but it is affecting his sleep, mobility, digestion, mental wellbeing, and his ability to work. He says it has become too much to hold, and too much for us to manage without proper help. He also experiences a constant sharp, zinging sensation running up his neck and into his head, often accompanied by loud tinnitus that never goes away. It shoots over his head and into his ears, affecting his hearing and deleting of certain frequencies, a deep sorrow for such a musical man.

Alongside his chronic pain, Pete experiences regular bouts of a disturbing and unexplained condition that happens nightly for weeks at a time. As he falls asleep, he is repeatedly overwhelmed by intense internal spasms and waves of physical collapse that move through his kidneys, back, core, diaphragm, pelvis, and abdomen. These episodes can occur dozens of times a night, leaving him exhausted, terrified and unable to sleep until early morning. At times they also happen during the day, when his core suddenly cramps and he loses stability, sometimes causing him to fall.

The sensations are extreme and frightening, involving cramping, a sense of fainting and falling through his body. He experiences paralysis, involuntary contortions, and a complete loss of stability and safety in these strange seizures. He describes it is as if his life energy being sucked out of him from the inside, as if something else is taking control.

During these periods, Pete feels utterly helpless, with no ability to regulate or stop what is happening. No doctor or practitioner has ever been able to explain or treat this, despite many attempts over the years.

When it finally passes, he is left exhausted, hollowed out, and shaken.

He has at times been taken to a place of utter despair, and at its worst has brought him into suicidal feelings, driven by the excruciating sensations, the relentlessness of the experience and the complete lack of answers. His love for his family and life itself has always stopped him from taking his life, but the inner torment remains.

He has tried countless approaches, medical, holistic, somatic, nutritional, energetic, and breath-based. Nothing has deeply ever touched it enough for it to change. Recently, this condition has intensified, lasting longer and becoming more severe, which is deeply worrying.

This is one of the key reasons we are seeking comprehensive investigation and specialist support. Pete is struggling to continue living with symptoms this extreme, unexplained and destabilising without real answers and proper care.

We need answers.

We need proper, thorough medical testing, the kind that goes far beyond what the NHS is offering. We need specialist diagnostics, advanced imaging, functional medicine testing, neurological assessment and expert treatment.

Pete needs an integrative approach that brings together:

• Allopathic medical investigation

• Functional and natural medicine protocols

• Somatic and trauma-informed therapies

• Specialist pain and neuromuscular treatment

• Advanced diagnostic tests that are unfortunately extremely expensive

Right now, Pete cannot afford the level of care required to finally understand what is happening inside his body, let alone what it may cost to treat whatever is found and have a real chance at healing.

So I’m asking for help.

I’m asking for the support of our community, anyone whose lives he’s touched in some way, people who know the depth of his generosity, and anyone who wants to help a genuinely good man reclaim his life from chronic pain.

How You Can Help.

Every contribution, small or large, will go directly towards:

Full spine MRI and other necessary medical imaging and examinations

Specialist assessments in neurology, pain, medicine and musculoskeletal health

Comprehensive testing for gastrointestinal health, inflammation and metabolic function

Medical, integrative, and functional medicine diagnostics, interpretation and consultations

Trauma-informed nervous system and somatic therapeutic support

Carefully selected body-based medical, integrative and complementary treatments

Development of a clear, personalised and effective treatment plan

Any additional investigations or interventions needed to fully understand and address the underlying causes of his condition

Estimated costs :

Phase 1: Investigation (UK and/or International)

£5,100 to £15,000

This covers full spine MRI and imaging, specialist pain and neurology consultations, comprehensive gut and metabolic testing, and a functional medicine consultation and testing package to interpret results and build a structured diagnostic plan.

Depending on what is needed and discovered, some of this testing may take place abroad (such as Germany or the USA), where more advanced or integrated diagnostics are available.

Phase 2: Initial treatment implementation

£5,300 to £9,300

This covers ongoing specialist oversight, trauma-informed somatic therapy, specialist physiotherapy and body-based treatments and supplements or protocols based on clinical findings.

Phase 3: Follow up, further investigation and subsequent treatment

£3,000 to £6,000

This allows for additional testing, repeat imaging, second opinions or further therapeutic intervention if new findings emerge.

Realistic overall range: £23,400 – £31,200

How much is raised will determine what level of plan we can follow.

Pete has given so much over the years.

He has held space for thousands of people.

He has helped so many transform, feel more deeply and heal parts of themselves they once thought were unchangeable.

Now he needs support from outside of himself. It is deeply painful to witness Pete living with such relentless pain every day. He is a fun, larger-than-life, inspirational and talented man who hides so much from the world.

Sadly, over the past year something has shifted, it feels as though he has begun to believe life will only get harder and that loss of hope is heartbreaking.

If you can contribute, thank you.

If you can share this with others, thank you.

If you can send love and support, thank you.

Something needs to change, and with community support, we can give it the best go possible.

With love and hope,

Kalindi Jordan