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My name is Kevin, and I work closely with Pearse and his family. Pearse is an amazing 4-year-old boy from County Tyrone who is courageously tackling the challenges of living with X-linked Myotubular Myopathy (XLMTM). We are fundraising to provide ongoing therapies, specialist equipment, and support to help Pearse reach his full potential and continue showing XLMTM what he’s made of. To help raise funds, I’ll be taking on a tandem skydive and would be incredibly grateful for any support, whether that’s through donations, sharing our fundraiser, or cheering me on. Every contribution, no matter how small, will make a real difference to Pearse and his family. Thank you for helping us push Pearse’s potential.

