At my young age of being 19 year old, I have been telling my papa story on plate form such as Facebook and recently on IG. You all know my papa for his incredible. Strong and powerful fight against heart disease

born with half a heart . Double right outlet and other medical heart defect

which in the month of Aug 2016 he received a heart transplant at the age of 2 year old.

he experienced five open heart surgeries

& many obstruction sleep apnea surgeries afterwards. A G tube feeding tube at 8 months of age.

we currently been fighting his struggle with obstruction sleep apnea since 2019. And continue to fight . We was in the hands of ENT Stanford medical team & switch to a much more complex team at Stanford back in 2023.

we used oxygen , CPAP & BIPAP medications therapy. We currently was seen by pain management specialist to translation him into his final stages.

back in 2024 their was talk about doing his 14th surgery due to his tongue and jar being enlarge and push way back

blocking his airway .

during this time fame , drs felt we could hold out a little longer before this surgery

until he reach his teen age and because he have autism . They felt this type of complications surgery will take a huge impact on him physically and emotionally.

base on papa labs work . His oxygen is building so high within his bloodstream

causing waking up to become difficult

skin and skin color changes and headaches are expanding .

oxygen within the blood is running into the 80% which is causing more and more worries . Heart transplant team can no longer do biopsy due to him being high risk under anesthesia.

we truly are in talks. Which is really risky

scary for me as a mother. To put him under another surgery.

but we are in talk about taking our chances to help him with his breathing

which possibly can be a tongue and jar surgery or

to put a tube within his neck which is a tracheostomy. Which will impact him so much to be in a wheel chair if we go this route possibly.

or to take a risk and Dont do anything and to get him through life with the complications.

I never imagined making one of these pages. So many people had brought it to me so many time

to help with transportation, medical equipment we need now at home for him, medications and treatments at the hospital

Thats the insurance take so long to approve now days .

as some of you made know, Im a single mother of papa and three other girls

which one of those girl

also fighting heart complications and have a pacemaker

and also have sleep apnea as well.

so sometime the weight on my shoulders with disability children

is a handful.

and I feel so many people told me about this plate form

so Im now comfortable to asked for the community help .

anything can help to get myself and my other children by papa bedside if needed

hotel, travel needs and everything else I had mentioned above.

it will truly matter to us as a family

especially to papa

as he been fighting for the last 12 years of his life . Just to make it and still get lots of treatments .

god bless you all