
Help our mom beat DFSP
Donation protected
Hello! My name is Olivia. Our mom has recently been diagnosed with a very rare and very aggressive cancer called Dermatfibrosarcoma protubera, or DFSP for short. Also known as stage 4 sarcoma of the lungs. As like most cancers this was a complete surprise for us. With this comes travel to specialist in New York due to her doctors not being trained in this rare case.
Heres a little back story to how we learned. She started off with this growth in her arm for a few years and was told it was a cyst, a mole, a wart. You name it that’s what it was. Til this growth turned into a massive tumor
protruding off her arm. Once removed, it took a month for results to come back, and with the help of several different locations including Harvard, we were able to learn that she has a very rare skin cancer. She then went for a second surgery to have the rest removed and has been left with a massive wound on her arm. At this point we were told all cancer was successfully removed. Once the PET scan was done we learned that it had then metastasized to her lungs. Starting at stage four sarcoma of the lungs. We are devastated. She then had to undergo a biopsy to learn what type of sarcoma we were dealing with. She has been set up with the best doctors in the Roper system and we felt so confident with knowing she is in the best hands. Once the biopsy came back we came to learn it was now DFSP. Unfortunately the doctors here are not trained in the rareness of this type of sarcoma. Our mom will now have to travel to New York to get a consultation in the next few weeks, on how to treat or manage this horrible cancer. We then have to hope that the doctors here are able to treat and attack this effectively.
With all this comes very extensive medical bills and traveling bills. Her insurance only covers so much and if any out of state. We have set the goal at $10,000 to help as much as possible. We know this doesn’t cover all but it will help. If you feel moved to donate we are extremely grateful. If you can’t but wouldn’t mind sharing, we would be extremely grateful as well. We will keep everyone updated as this journey goes on. Thank you for taking the time to read this and for helping. Whatever we have left over after this journey will be donated back to the research of DFSP to help doctors come to understand this condition better.
Organizer and beneficiary
Olivia Roberts
Organizer
Summerville, SC
Debra Gibney
Beneficiary