Help Our Loving Girl Thrive with Williams Syndrome

Donations provide ongoing cardiac care, therapy, and daily needs for a resilient child

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35 donors
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$4,158 raised of 

Help Our Loving Girl Thrive with Williams Syndrome

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Our sweet girl was diagnosed with Williams syndrome, a rare genetic condition that affects approximately 1 in 7,500 people. While she is the happiest, most loving little girl with the sweetest spirit, her diagnosis also comes with many medical and developmental challenges that our family is navigating every single day.
She currently has three heart defects associated with Williams syndrome, including pulmonary stenosis, narrowing of the aorta, and a hole in her heart. Because of the severity of her heart conditions, she requires ongoing care from specialists, regular cardiology monitoring, testing, and frequent follow-up appointments. There is also a possibility that she may need medical intervention or procedures for her heart in the near future.
In addition to her cardiac conditions, she also requires intensive weekly physical therapy and occupational therapy to help her reach developmental milestones and strengthen skills that do not come easily for her. Simple things many children learn naturally often require extra support, patience, therapy, and consistency for her.
Despite everything she faces, she continues to smile through it all. She is incredibly observant, loving, resilient, and brings so much light into our lives every single day. Watching her work so hard for milestones others may take for granted has shown us a strength we never knew possible.
As we continue this journey, the financial burden of medical appointments, specialist visits, therapies, travel, and ongoing care continues to grow. We are creating this fundraiser to help ease some of that stress so we can focus fully on giving her the best care, support, and opportunities possible.
Whether you choose to donate, share, or simply keep our family in your prayers, we are endlessly grateful for every bit of love and support. Thank you for helping us advocate for our sweet girl and for helping us spread awareness and acceptance for Williams syndrome.

Organizer and beneficiary

Alison Heilig
Organizer
Rocky Point, NC
John Heilig
Beneficiary
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