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Help our Little Viktoria, please

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For our little Viktoria, as „a victory“ means win & triumph and we believe we can manage it also with your help.   Dear friends Please share if possible. We would like to ask you for financial help for our daughter Viktoria. We want to book a dolphin – therapy and another medical therapies which help to progressing and doing unbelievable advances for our little girl. These are unfortunately not covered by the medical insurance in Norway. She is our little – big fighter with fantastical heart. It is not easy to talk about it... it still hurts... We never forgot the moment we were been informed to be expecting twins, it was unreal feeling of lucky, cheer, love and fear too, it was mix of sences in this moment, but the great happiness dominated. What a shame, unluckily, one year and a half before, accurately a day before our wedding, we lost our first baby... This was the reason we were been pleased of on-coming of our two lovers as it was a hugeous present. All gravidity I was doing well, expecting a few complications, there was nothing to suggest they will come earlier. Girls were born 3 months sooner, and everything changed thereby. I will not specify the moments they had to fight for their lives. I do not wish to any parents go through this, to see them and to pray the God for helping them in fighting for their lives. But the worst news just incomed. Two days after the birth, doctors informed us there is something wrong with one of twins, there are some deflections. Nevertheless, in spite of many exams, they confirmed the news which no parent want to hear... „Your child is ill.“ We were been still talking it would be good, nothing was wrong with her... Now we know it is not so, she have to fight all the life. Her sister Mia is healthy, she is our little devil, we would give everything for being Viky so good, but we know it is not possible, she will be different. Viktoria“s specified diagnosis is DMO - Cerebral palsy –mixed guadruparesis – Central Tonus disease, Axial hypotonia,Acral hypertonia. She has hitted both arms and legs and all left side of body is not so good functional. We would like to do maximum for her... We want herself to be as such self-reliant or to be total autarchic. We want her to be progressing also in case of progressing by little steps. We do not know where can she get, no doctors can tell us it too also there are omnifarious prognosis. We know just the one – we can help her, there is a chance of her walking and we do not want to fall out of any alternatives. There are some helps by a training and continual rehabilitation or by some tools etc. Rehabilitation by itself is very important, and there are parents for the rest – there is fight with an exercising every day few times a day. Some days are good, some days are bad, but we can not ease it up, we have to fight all day also with a crying. Viktoria already realised some rehabilitational visits in Renona Rehabilitation AT Semmering and in ADELI Medical Centre in Piešťany too. It is very important to visit these rehabilition centres 3-4 times a year but it is very very expensive. Viktoria makes very big progress by visiting of these centres. Viktoria already realised an operation Method Ulzibat which helped her to release of spasm mainly on the down part of the body. It helped her it before another problems as these childs have huge defects of coxae. Viktoria has these problems too, we believe she will not so tension, it will not press on coxae, it will be without hurts, it will not make worse thankful this operation. Viktoria started with Vojta method, Bobath method and she is training some exercises from rehabilitation centre now. It is unreal hours of donkey-works, so much of tears... She is also visiting hypotherapy where she is improving her back and abdominal muscles, she is visiting swimming-pool periodically which she likes, she is getting massages regularly. Viktoria should be laying by the doctors... but she is big fighter and she has fantastic power to fight. All people takes as obviousity what can health child make. Nobody can feel the sence, what big I felt in moment when Viky could hold the bottle in her hand... the moment when Viky could turn on the tummy... the moment when Viky could raise her head without any help... the moment when Viky could sit by herself even though it is not so ideal... crawling on the tummy...starting to crawling on the knees which is little step before four-stepping... all these one year and a half after the birth... I wanted to scream so much, I wanted to scream that we already handle it, but I know there is also long long way in front of us. We are fighting also 4 years, we can not surrender it, we have to fight crossly all the problems and we have to believe we would handle it. This is the reason we would like to visit the dolphin-therapy which could help to improve her health condition and we want to indulge her little happiness. We are making efforts so much but we are missing wherewithal. My husbad is still working as he wants to make money for another rehabilitation for Viky. During the rehabilitation, I am without any financial income as there is unpaid free-time in my work. And, of course, we can not forget our second daughter Mia who also needs the parents and she has also some needs. It is really hard to combine and make it function as a whole. We would be so glad for your help. Viktoria makes big progress also thanks to other people. We would not handle it without your help and we are very thankful. We want to thank upfront to everybody who will help our Viky. Viktoria did not choose this illness, neither did anybody else. She is pretty, lovable, riant, happy and clever girl, we are thankful for her smile, we are thankful for all progress she makes. This is the reason for fight … our little angel.

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    Daska A Matus Macalka
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    Støren, 16

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