Throughout 2020, our dad Neale started noticing weakness in his left hand and arm. Always being a physically fit and strong man, dad found this strange and went to see his GP. This started a long journey of doctors visits, surgery, and many, many tests to explore what was going on. Over time, this weakness began to spread to dads left leg- making balance and walking difficult, exhausting, and at times, dangerous.
We were told that this could be a case of Motor Neurone Disease, a degenerative and terminal illness. Unfortunately in November, this was confirmed after exhausting every other avenue of possibility that could explain dads symptoms. This illness effects the neurone cells ability to deliver the brains message to the muscle, which means that eventually the person will not be able to walk, talk, swallow or breathe. While there is a lot of research occurring in this area, there is still no cure and very limited treatment. Mostly, there is just care.
For now, Dad is still able to walk and talk and do the things he loves, like playing with his 3 grandchildren and gardening at his home in Denmark. However he is finding it more challenging to do things like getting up from a seat, and especially to get out of the car. An MND diagnosis is so unforeseeable, and our parents have a Mazda sedan that is quite low to the ground. We would love to be able to help dad get a higher car that he can get out of more safely and easily, but we need some help. Eventually, the car we are looking at will be able to be modified to accommodate a wheel chair or a mobility scooter.
It is so important for dad to continue getting out and about while he can, and any donation would be so deeply appreciated by our family during this time. We have set a goal of 10k, but anything we achieve here together will be a help!
With love and gratitude,
Chloe, Karlie, Alex & Georgia
- Tcb007 .
- debono hc
- Carlo Chiodo
Organizer and beneficiary
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