At 20 weeks, I received news that changed the course of my pregnancy. An ultrasound confirmed that my unborn baby, Ofelia, has a defect in her neural tube: lumbosacral myelomeningocele (spina bifida), Arnold Chiari malformation, and ventriculomegaly. These diagnoses have brought both fear and hope as we navigate the best path forward for her health and future.

To give Ofelia the best chance at a healthy life, we are preparing for a fetoscopic procedure to repair the spina bifida defect. This surgery involves closing the defect in two layers through three small incisions in the uterus, using a cryopreserved human umbilical cord patch. The goal is to preserve Ofelia's leg movement, possibly reverse her ventriculomegaly and Chiari II malformation, and offer her a better quality of life once she is born. The window to perform this surgery is very short—it must be done before she reaches 26 weeks. Today, Ofelia is 23 weeks and a very active baby, but time is of the essence.

This procedure is part of a research study that will help other families facing similar challenges. Although it is highly specialized and carries risks for both me and Ofelia, the potential benefits for her are life-changing. We are deeply grateful for any support you can offer to help us through this journey. Your generosity will not only help Ofelia, but also contribute to advancing care for other families in need.