HelpNoels battle 4 cancer keep family together

Hi I’m Melissa, Noel is 2 years old and our son has leukaemia tcell, misdiagnosed for 7 days and was placed in PICU till the chemo started and the mass on his heart reduced. If your child has a lump on their neck please request a blood test. I can not stress this enough! His lymph nodes were swelling up trying to get rid of the T cells. We were told it’s epstine bar virus from a dr at the private hospital 1 week before.

It was Acute Lymphoblastic Leukaemia, T Cell. In 7 days it developed a lump on top of his heart and put pressure on his breathing and heart. Noel and I were rushed to Queensland childrens hospital on the 7th February by the royal flying drs and at 2 am on arrival the drs at the Queensland childrens hospital in PICU said that Noel has been prepared for chemo. That he has ALL TCell. Jason (dad) and April were on the road travelling to Brisbane and were at Miriam vale.

As we are not locals of Brisbane and are staying at Ronald McDonald house, accross the road from the Queensland childrens hospital. The induction phase 4 weeks of treatment didn’t get the desired results, his bone marrow is still making immature t cells and we are approaching half way of consolidation. Jason and April his twin sister is traveling back and forth from Brisbane to rockhampton as Noel requires full time care and can be admitted back in hospital at any stage. Jason who drives trucks for Linfox has used up all his holiday leave and we have depleted the saving within 10 weeks of stay. The initial projection of time was 9 months in Brisbane for treatment. This can change at any time. Ideally it would be nice if Jason and April could stay in Brisbane for a few weeks to reduce the travel risks as we have all needed to be tested to see if we are a match for bone Morrow and to help reduce the stress on the twins being seperate.

On the 15th of March 2022 the consult dr came in and said there is a 50% chance the cancer will still be there after his next round of chemo( the phase we are currently

half through) I don’t want to be on my own for anymore of this bad news.

Noel is happier with his blended family about and seems to want to eat and move. Noel is having to learn to walk again, refuses food because of chemo. His treatment is oral chemo, injections as well as day trips to the hospital for lumbar biopsy with chemo and bone marrow test or just iv medication and chemo frequently as apart of his treatment.

We can’t return home for the fear of Noel becoming septic. We have to take his temperature regularly to ensure he doesn’t get a temp as that’s a sign of infection. We have lost a dear friend and can’t return home for her funeral. It’s a horrible situation and would like the whole family to stay with Noel for the duration of his treatment. Noel had fought 4 infections in 2 weeks he is a little champion. We are so proud of him.