- J
Hello, friends and family,
We are reaching out with heavy hearts to share that our beloved son Nicky, who is just 8 years old, was recently diagnosed with a rare disease called Langerhans Cell Histiocytosis (LCH). LCH is a "cancer-like" condition where a type of white blood cell, called a Langerhans cell, grows uncontrollably and forms tumors or damages organs.
"Nicky Boom," as we affectionately refer to him, has always been a bright, energetic kid who loves the Eagles, football, baking with his mom, hanging out with his dad in the barber shop, and video games. A few weeks ago, we noticed Nicky started to complain of headaches and had a nosebleed. He then developed a lump above his eyebrow and facial swelling. After numerous tests, scans, and an anxious wait, we received the official diagnosis of Langerhans Histiocytosis (LCH). The doctors have confirmed Nicky has single-system LCH with lesions in the bone, which will require a demanding treatment plan.
Nicky has begun some treatment, which involves steroid treatment at Children's Hospital of Philadelphia. He may also need to begin chemotherapy for a year. We have had some setbacks, and Nicky's eyelid started to swell after the biopsy. This warranted more scans, testing, and appointments at CHOP.
While we are grateful for the incredible medical team, the financial burden is already significant and growing. The funds raised will go directly toward co-pays, deductibles, and treatments/medications not fully covered by insurance.
Since receiving the diagnosis, this has become a financial burden to our family. Basic expenses like food, gas, and keeping our household running during this challenging time have been difficult. My husband has had to miss time off work, which means he's not getting paid.
How You Can Help
Your support, whether it's a donation, a message of encouragement, or simply sharing this fundraiser, truly makes a difference. We are staying strong for Nicky and appreciate any help you can provide to alleviate this financial strain and allow us to focus solely on his healing.
We will post regular updates here to keep you informed of Nicky's progress.
From the bottom of our hearts, thank you for being a part of Nicky's journey to recovery.
With love and gratitude,
The Palmer-Getz Family

