Help Nickolas Aml leukaemia & lung transplant GVHD
Donation protected
Hello everyone I’m Christos I have set up this gofundme to help support my son Nickolas. He has been battling through Aml leukaemia and now chronic GVHD /Bronchiolitis obliderans syndrome lung disease
Mid April 2021 my son Nickolas begun to feel unwell After several visits to our local Gp and three visits to emergency at the Royal Children’s Hospital where nickolas was treated for tonsillitis and booked in for future outpatient appointments at RCH At this stage we had no idea that my son was critically ill with AML LEUKAEMIA CANCER which was aggressively spreading throughout his body:( Over the next few days Nickolas health continued to deteriorate with nausea vomiting swollen eyes and small lumps appearing on his head . So i took my boy back to Emergency at the Royal children’s hospital the nurse looking after my boy was very concerned about Nickolas and how he presented I told the nurse this is our third visit to RCH emergency within a week and i was extremely worried how fast his health was deteriorating after an hour or so the nurse looking after my son took some bloods it was not long after nickolas blood results returned the nurse came to see me and kindly asked to speak to me outside of the cubicle to let me know the doctors from oncology will be down to see Nickolas and speak with me When the oncology team came down the doctor who continues to treat my son took me to another room to tell me the devastating news of my sons diagnosis which was an aggressive type of blood cancer AML LEUKAEMIA (Acute myeloid leukaemia
I am devastated shattered in tears on the phone to let my children at home know that their little brother will not be coming home any time soon :(
Not long after nickolas was diagnosed with aggressive Aml leukaemia he begun intense chemotherapy with supportive care in place at the Royal children’s hospital after several months of intense treatment nickolas leukaemia returned . Nickolas was now being prepared for a bone marrow transplant which included his siblings having to do tests in hope for a match fortunately nicks older sister was a 100% match and transplant started October the 26
A couple months after bone marrow transplant Nickolas was able to come home for Christmas and new years to spend time with family and friends with strict isolation conditions in place
Not long after nickolas being home he was admitted back to hospital for rare infection called BK virus and nickolas was admitted back into hospital for a further seven weeks under the pain and infectious disease team on the oncology ward this was a long hard painful admission a few weeks after being discharged nick was again diagnosed with another life threatening disease called (Graft versus host disease)this is common in patients after transplant and if diagnosed early can be managed with immunosuppressants which is what Nick has been doing unfortunately nicks GVHD is chronic.
Since being diagnosed with cancer and chronic GVHD Nickolas has been fighting extremely hard in and out of hospital he continues to receive ongoing supportive care at the children’s hospital for his
LEUKEAMIA GVHD he is also being treated at Peter MacCallum cancer centre with ECP apherisis to help treat and slow the progression of his chronic GVHD to his lungs eyes liver and skin.
Over the last few months nickolas has also been battling another chronic illness with his lungs called Bronchiolitis obliterans syndrome a rare and extremely severe lung condition with poor survival rate my son was recently referred to Alfred pediactric respiratory Lung transplant team at the Alfred hospital for ongoing support towards lung transplant he is currently being assessed for future lung transplant.
Nickolas is my youngest of four children whom I’ve been a sole carer for
As any parent can imagine the impact and devastation this has had on my family especialy Nickolas and my other children who have all stepped up and taken on huge responsibilities whilst dad remains in and out of hospital caring for there beautiful little brother
nickolas has had multiple admissions over the last few months at the children’s hospital with his recent admission into ICU intensive care unit on breathing support
Nickolas is currently in hospital on breathing support undergoing assessments and lots of tests for future lung transplant he is being monitored by the respiratory -palliative care and the oncology team at the children’s hospital with ongoing supportive specialist care from the Alfred hospital , Peter Macallum and the Royal children’s on antibiotics pain relief and Bipap breathing support
we are all staying positive and remain hopeful nickolas will remain strong for future transplant over the coming days weeks we continue to pray that he will receive his second chance of life -lung transplant
Since Nickolas was first diagnosed with aml leukaemia cancer my son has had Over 1,900 blood tests
Over 40 blood & platelets transfusion.. Countless days of febrile 38 and above. 10 lumber punctures in day surgery.
2 Admission into ICU intensive care
Nasal gastric tube
TPN IV nutrition
Blood hemorrhage
Chest line infections..
MRI PET scans Multiple scans & Ultra sounds Ecg heart and ultrasounds
4 chest lines Hickman
2 pick lines
1easy flow chest port
Constant controlled pain relief and medications intense Chemotherapy treatment Bone marrow stem cell transplant BK virus and now looking at lung transplant
All this has taken it’s toll but my beautiful boy continues to fight through everything that comes his way
Stay strong my boy
We will never stop fighting for our beautiful strong boy whom we love dearly and continue to fight through this journey together as family remain hopeful strong and positive with the support of everyone your constant thoughts and prayers are keeping my son strong we love and appreciate everyone.
God bless you and keep you strong my precious boy Nickolas
Much love
Christos Nickolas & Family ❤️
Mid April 2021 my son Nickolas begun to feel unwell After several visits to our local Gp and three visits to emergency at the Royal Children’s Hospital where nickolas was treated for tonsillitis and booked in for future outpatient appointments at RCH At this stage we had no idea that my son was critically ill with AML LEUKAEMIA CANCER which was aggressively spreading throughout his body:( Over the next few days Nickolas health continued to deteriorate with nausea vomiting swollen eyes and small lumps appearing on his head . So i took my boy back to Emergency at the Royal children’s hospital the nurse looking after my boy was very concerned about Nickolas and how he presented I told the nurse this is our third visit to RCH emergency within a week and i was extremely worried how fast his health was deteriorating after an hour or so the nurse looking after my son took some bloods it was not long after nickolas blood results returned the nurse came to see me and kindly asked to speak to me outside of the cubicle to let me know the doctors from oncology will be down to see Nickolas and speak with me When the oncology team came down the doctor who continues to treat my son took me to another room to tell me the devastating news of my sons diagnosis which was an aggressive type of blood cancer AML LEUKAEMIA (Acute myeloid leukaemia
I am devastated shattered in tears on the phone to let my children at home know that their little brother will not be coming home any time soon :(
Not long after nickolas was diagnosed with aggressive Aml leukaemia he begun intense chemotherapy with supportive care in place at the Royal children’s hospital after several months of intense treatment nickolas leukaemia returned . Nickolas was now being prepared for a bone marrow transplant which included his siblings having to do tests in hope for a match fortunately nicks older sister was a 100% match and transplant started October the 26
A couple months after bone marrow transplant Nickolas was able to come home for Christmas and new years to spend time with family and friends with strict isolation conditions in place
Not long after nickolas being home he was admitted back to hospital for rare infection called BK virus and nickolas was admitted back into hospital for a further seven weeks under the pain and infectious disease team on the oncology ward this was a long hard painful admission a few weeks after being discharged nick was again diagnosed with another life threatening disease called (Graft versus host disease)this is common in patients after transplant and if diagnosed early can be managed with immunosuppressants which is what Nick has been doing unfortunately nicks GVHD is chronic.
Since being diagnosed with cancer and chronic GVHD Nickolas has been fighting extremely hard in and out of hospital he continues to receive ongoing supportive care at the children’s hospital for his
LEUKEAMIA GVHD he is also being treated at Peter MacCallum cancer centre with ECP apherisis to help treat and slow the progression of his chronic GVHD to his lungs eyes liver and skin.
Over the last few months nickolas has also been battling another chronic illness with his lungs called Bronchiolitis obliterans syndrome a rare and extremely severe lung condition with poor survival rate my son was recently referred to Alfred pediactric respiratory Lung transplant team at the Alfred hospital for ongoing support towards lung transplant he is currently being assessed for future lung transplant.
Nickolas is my youngest of four children whom I’ve been a sole carer for
As any parent can imagine the impact and devastation this has had on my family especialy Nickolas and my other children who have all stepped up and taken on huge responsibilities whilst dad remains in and out of hospital caring for there beautiful little brother
nickolas has had multiple admissions over the last few months at the children’s hospital with his recent admission into ICU intensive care unit on breathing support
Nickolas is currently in hospital on breathing support undergoing assessments and lots of tests for future lung transplant he is being monitored by the respiratory -palliative care and the oncology team at the children’s hospital with ongoing supportive specialist care from the Alfred hospital , Peter Macallum and the Royal children’s on antibiotics pain relief and Bipap breathing support
we are all staying positive and remain hopeful nickolas will remain strong for future transplant over the coming days weeks we continue to pray that he will receive his second chance of life -lung transplant
Since Nickolas was first diagnosed with aml leukaemia cancer my son has had Over 1,900 blood tests
Over 40 blood & platelets transfusion.. Countless days of febrile 38 and above. 10 lumber punctures in day surgery.
2 Admission into ICU intensive care
Nasal gastric tube
TPN IV nutrition
Blood hemorrhage
Chest line infections..
MRI PET scans Multiple scans & Ultra sounds Ecg heart and ultrasounds
4 chest lines Hickman
2 pick lines
1easy flow chest port
Constant controlled pain relief and medications intense Chemotherapy treatment Bone marrow stem cell transplant BK virus and now looking at lung transplant
All this has taken it’s toll but my beautiful boy continues to fight through everything that comes his way
Stay strong my boy
We will never stop fighting for our beautiful strong boy whom we love dearly and continue to fight through this journey together as family remain hopeful strong and positive with the support of everyone your constant thoughts and prayers are keeping my son strong we love and appreciate everyone.
God bless you and keep you strong my precious boy Nickolas
Much love
Christos Nickolas & Family ❤️
Organiser
Chris Galanis
Organiser
Attwood, VIC