This particular type of leukemia was genetic, he had no idea his genes had mutated. The cancer is very aggressive and likes to invade the spine and brain. Good news for Nicholas, this had not happened.
While in Seattle, where Nick had been living for the past year, he received his first round of chemotherapy, losing his hair, and a lot of weight. His work was fabulous, even though it could be at least a year before he can return to work. They put him on disability and told him to get better.
Nicholas’s doctor referred him to an oncologist friend in Boston. Nicholas flew himself home to Attleboro thinking he was headed for a bone marrow transplant. That would come, but not yet. Nicholas started a very aggressive 56 day chemo routine. He has been hospitalized twice, once for an infection that took 5 days to clear up and a second time for a seizure he had at home. Nick has been receiving chemo through a port in his chest and into his spinal chord, plus chemo shots and pills, all causing nausea, fatigue, loss of appetite, hair loss, aching bones, and spinal headaches. All of which he has managed mostly with a smile, but always with a positive attitude.
His final diagnosis is Acute Biphenotypic Leukemia, a very rare and aggressive form of Leukemia. This type of Leukemia is a cancer found in your blood and bone marrow and is caused by the rapid production of abnormal white blood cells. These abnormal white blood cells are not able to fight infection and impair the ability of the bone marrow to produce red blood cells and platelets. He is looking forward to the bone marrow transplant in June which will hopefully put him in a full remission. As much as he is looking forward to this procedure, the thought of 60 days in isolation/quarantine is a bit tough to comprehend, not to mention the year or more it will take to rebuild his immune system.
All of this means one thing expensive procedures. His medical requirements have involved blood transfusions, platelets, chemo, 2 lengthy hospital stays, 1 short hospital stay, medications, and a month long stay in the hospital when he has the bone marrow transplant. Not to mention the complete sanitizing of his house after his 30 quarantine for the bone marrow transplant. Nicholas and his family are trying to get out ahead of the upcoming bills, as not everything is covered by health insurance.
No donation is too small. Please help Nicholas continue his battle with leukemia and make sure that he can return to his life in Seattle without worry of mounting debt.
And all of his Aunts, Uncles, Parents, Grandparents, Siblings, Cousins, girlfriend and friends.
- Teresa Shumila-Wilder
- Patricia Mackill-Mansfield
- Sue and Mike McVeigh
- Chris Stadolnik
- Cheryl Carlson
Organizer and beneficiary
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