Myles' Campomelic Dysplasia Journey Fund

https://6abc.com/taco-bell-richboro-fast-food-manager-becky-arbaugh-saves-babys-life-with-chest-compressions-in-bucks-county-drive-thru/14678517/

https://www.nemours.org/services/campomelic-dysplasia.html

Our son Myles was born with Campomelic Dysplasia, a rare and life-threatening skeletal disorder that affects fewer than 1 in 500,000 births. From the moment he arrived, Myles has fought harder than most people will in a lifetime.

We spent months in the hospital, living moment to moment, unsure if our baby would survive. Myles has faced unimaginable challenges including:

• Total airway collapse

• Infantile scoliosis

• Bowed femurs

• Cardiac arrest

• Cervical spine abnormalities

• Micrognathia (small jaw)

• Laryngomalacia & tracheomalacia

• Spine instability

• DVT (deep vein thrombosis)

• G-tube dependence for feeding

• Trach and ventilator dependence

Despite it all, Myles continues to amaze everyone with his joyful spirit and resilient heart. He is truly a miracle — lighting up hospital rooms, therapy sessions, and our home with his laughter and love.

But the road hasn’t been easy.

We are currently facing $179,000 in medical debt, and that number continues to grow. The financial and emotional toll this journey has taken on our family is heavy. From hospital stays and specialist care to home health supplies and travel, we are doing everything we can to give Myles the best possible life.

We’re also preparing for the next chapter of his care — including the urgent need for a wheelchair-accessible van with a ramp so that Myles can travel safely to appointments and experience life beyond hospital walls.

Every donation — no matter how big or small — helps us breathe a little easier and focus on what matters most: caring for our boy. If you’re unable to give, simply sharing our story means more than you know.

Thank you for loving Myles, praying for him, and standing beside us. Your support carries us through.