
Help Mya's Family with Funeral Expenses
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My baby girl was born a healthy 8 pounds 1 ounce, a full-term baby at 41 weeks. I guess that's because of her wanting to stay as close to her mother/me as possible, just as she did all the way up until her last day here on this side of life. She had no developmental delays and I had not seen any signs of her taking ill due to having early onset Juvenile Huntington's. So, I had no concerns and even her primary care doctor was in line with checking her board of health off as a healthy kid. Until one day, on her 9th birthday to be exact, we took notice of her trying to run in a forward position but was not moving forward at all. She was in a stance like a still position with her legs yet moving, as if she was intended to be walking but was just not able to. She looked at me, we all were staring at her as she was looking back in a confused manner.
Then it came to her trying to tie her shoes which she found it very easy to do as she always could do since the age of three. Her brother Jamarcus taught her how. Then along came the buckling of her belt on her pants. Then came the falling along with not being able to ride her bike straight anymore, which at that point I was overly concerned running her from doctor to doctor. Then our home was disrupted by others that didn't even know her and definitely weren't concerned at all about her medical condition. With the assistance of a doctor at Lake Monroe Hospital, I got her right into Nemours Children Hospital (which is a very awesome hospital) who actually took the time out to monitor her and took excellent care of her. Along with their time to work with us and listen to my greatest concerns, they gave her a full workup in which it also included genetic testing to find out our worst fears had come to our already hurting hearts. It was that of our worst nightmare, they found out that indeed it was that of Early Onset Juvenile Huntington's Disease.
I said to myself she's only 9 years old and doesn't understand what's happening. She loved to run and play in the parks and with the neighborhood kids, she had so many toys because she's a big dreamer and acted out her childhood life as if they were her. Which meant that she had big plans of a great future. She was a happy lively kind of kid and stayed that way until the day of her reunion with GOD, Jesus, the Holy Spirit and all of the Heavenly host. She just wanted to always do things on her own terms and for that reason I felt as if that truly took a lot away from her. Plus she started feeling tired all the time. I believe that she was just trying to put up a fight due to the fact that she didn't want to see me hurting, but my baby was extremely strong as well.
We lost Mya in her passing on Sunday, July 7, 2024. Our hearts are truly broken, but we know she's in a better place. No more suffering. No more pain. We love you Mya and we will miss your smile, big bright eyes, laughter, and your beauty. Every morning greeting us. Her favorite gospel song which she sang all the time is 'I Pray we'll all be ready'.
Please help us in this time of bereavement as we plan funeral services for Mya in Sanford, FL (viewing only), and her birth home of Pensacola, FL. Where she will be buried. #TEAMMYA really and truly love people, there's no gift too small nor one too large we need it all please and thank you so much. May GOD ALMIGHTY bless you all in a great way.
PLEASE HELP US AT THIS TIME OF LOSS. WE ARE ASKING FOR FINANCIAL DONATIONS TO HELP FACILITATE THE VARIOUS TRAVEL AND SERVICES.
Organizer
Nicole Johnson
Organizer
Sanford, FL