I need approximately 600 persons donating me with only 15$ and i can raise my goal.
I know it is not impossible! I have learned that a lot of thing in life are not impossible, just you really really have to want it! And i really really want it!
I am a 13 years old boy from Hungary. I have a rare, progressive, muscle wasting disease, called Duchenne Muscular Dystrophy. I am already disabled, not able to walk even stand. My mother has been searching for a cure for more than 10 years. We are fighting with the time. A year ago a got my chance for a better life. After 10 hard years I am now participating in a clinical trial at the UCSF Benioff Children's Hospital in San Francisco. It means the LIFE for me, a hope for a better life.This trial will last 2 years or more. This treatment helps me to stay stable or get back my strenght, it helps my lung and heart work longer and better. Me and my family traveled from all the way from Hungary for me. My parents want to save my life, they sacrifice their work, all their saved money, their time and the unit of their family. I have two sisters. I have to stay in San Francisco during the entire study, because i have infusion every second week. My parents travel back and forth from Hungary to San Francisco monthly to be with me and take care of me. They do everything for me, beyond their power and opportunities. I know that i am not the only one child in the family, and my sisters need my parents support too. My parents are divorced, but this situation is not an obstacle for them to fight together for me. I know my parents work very hard for me and my sister, right now especially for me. I really want to help hhem, thank their endless love and support. I decided to raise money for the expenses they have to deal with. I would like to help with 10000$. They can get 4-5 airplane tickets from this money. I am a student so i dont have any income. I offered them my saved packet money, but they said no, not at all. I know that they needs to buy lot of airplane tickets, and have to pay for my additional treatments, and San Francisco is very expensive to live.
To cover my expenses is a big deal. My mom says that everything will be fine, but i know that she has a lot to think about how to manage all these thing for 2 more years.
I really want to help my family .
Please help me to help them to finance my fight with Duchenne Muscular Dystrophy.
I really appreciate all your help!
- Tamas Mako
- Linda Goldfarb
Organizer and beneficiary
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