This campaign is a last resort. Much to my mothers despair I have started this campaign as there seems to be no other way. Almost three years ago my mum was diagnosed with MS (primary progressive) meaning at some point down the line - her brain would not be able to send any messages to her body - telling her legs to move, for example. This point is now. My fiercly independent mother is now almost entirely dependent on everyone else. Whilst I was finishing my A-Levels, June 2017, my mothers condition took a turn for the worse and has not bounced back, and never will. I had been her carer for a few months now but did not know the true hardship of the role until the summer of 2017. Nor did my mum realise how tough MS could be up until this point. Our roles were at some points completely reversed, she was the vulnerable one and I the provider. In October my mum went into a neurological rehabilition centre for 7 weeks. She hated every minute of it. It was an emotional rollarcoaster for both of us. On one hand i experienced what it was like to be a normal 19 year old yet it seemed that it had to be at the cost of my mother not being with me. Since her return, many things have changed, we now have 4 carers coming in a day, a big but necessary adaptation. The Absolute Care team have been wonderful and have made living at home so much easier for my mum and myself. Of course things are still tough, specifcally because my mum is now living upstairs and doesn't get to go out which she is finding difficult. Daytime TV sucks.
Due to our current Governments way of dealing with personal care at home - we have to pay a fairly hefty price a week which will of course add up. With regards to my mums income and pension I was fairly suprised at the amount made to pay but I understand that unfortunately that is the way it works and there are others in worse situations.
Myself - I work one shift a week on minimum wage. If things were slightly different I would work full time, non stop, as I have come from a family that drilled into me the importance of working hard. But spending all day out can sometimes put my mum at risk if she is having a really bad day - she is prone to falls.
With a very small income coming from both of us combined, the future is daunting. There is so much that I have to learn and the process of moving house seems complex. There are the adaptations for the new bungalow, of which there will be plenty, any solicitor fee's, finding out about council tax rates, stamp duty, moving van hire, so many factors into this one decision.
Now to clarify, if anyone where to donate money to this campaign it would all go to one side to be saved for things listed above.
Asking for money is a huge step. But I hope that I have shown to you in someway that this is not a decison taken lightly. I wish things were different. But they aren't, this is where we have ended up. ANY small contribution will mean so much to us and I really can't stress how grateful we will be as we appreicate that you are ultimatey paying for two strangers to have a higher quality of life. When the time comes i promise i will give back to everyone who has ever helped us in whatever way possible, and will never forget the kindess anyone has shown me. Times that are these hard bring out the worst and best in people, so when people are kind it never goes unnoticed and is never taken advantage of.
Thank you all for taking the time to read our story. Raising awareness is so crucial so do please read up on MS more if you can.
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