Help my daughter get life saving surgery abroad

I am fundraising on the behalf of my daughter Jess, who recently found out she needs major specialised surgery that can be done either in Europe or America, that comes with a price tag we simply cannot fund ourselves.

From the age of 13 Jess has suffered from terrible hip pain, along with pain in her other joints. After 2 failed hip surgeries Jess was eventually diagnosed with Ehlers Danlos Syndrome (a connective tissue disorder), leaving her to deal with a multitude of symptoms including daily dislocations and subluxations.

In 2021 Jess began to experience excruciating abdominal pain with excessive weight loss (18kg to date, which is still declining). After being back and forth the hospital and inconclusive tests Jess’s diagnosis went from Crohn’s disease, colitis, IBS, to eventually an eating disorder. I knew my daughter, and this wasn’t an acceptable diagnosis as going out for food was our thing due to her restricted mobility. After endless research we came across a professor in Germany who managed to diagnose her in June 2024, with the following abdominal vascular compressions:

Severe Nutcracker Syndrome (Posterior and anterior)

Severe Median Arcuate Ligament Syndrome (MALS)

Severe May Thurner Syndrome

Severe Pelvic Congestion Syndrome (46% of blood flow sits in her pelvis)

Moderate Superior Mesenteric Artery Syndrome

These compressions cause her to experience excruciating abdominal pain with small mouthfuls of food and drink, along with other daily debilitating symptoms. If these compressions are left untreated Jess is at risk of: stroke, pulmonary embolisms, a life of tube feeding, dialysis, organ transplants and death.

For as long as I can remember my daughter wanted to become a nurse but had to defer university 3 times and then her mobility became so limited this was no long a feasible option. Jess then had to re-study her A levels from home due to being too unwell to attend college in person, after this surgery she hopes to become a cardiac physiologist.

Due to no support in the UK from her gastro department and Jess now being extremely malnourished and underweight, we are now desperately fundraising to get her the surgery ASAP. Any money raised will go towards; surgery, flights, accommodation, unforeseen complications, loss of earnings, bills and one final test with another professor in a different city to see ensure there are no further compressions in the body and blood is flowing as it should be. Some of the funds may also be used to go towards other testing such as genetic testing (for safety of surgery), or towards consultations with doctors where the compressions have caused complications/damage to other areas/organs of the body. 

My daughter has fully accepted she will always have restricted mobility and pain in her joints and is learning to adapt to this. However, being able to eat more than a few mouthfuls and enjoy food again will give her some enjoyment back and be able to participate in family events again e.g.birthdays and Christmas.

We appreciate times are hard, but we are hoping to reach out to as many people as possible to donate a pound 

So, if you can please share my daughter's story to everyone that you know, it would be hugely appreciated.

Thank you!