desperately trying to find answers for my baby

Hello, my name is Sarah. We have never asked for help a day in our lives, but it has come that time to put our pride aside and ask for that help. I am a stay at home mom to 8 beautiful children in which I homeschool and work daily to meet all my children needs and my husband is the hardest working man I know whos dedicated 17 years and continuing in the department of correction, but at this time things are difficult. Here is my daughter's story. My daughter Juliana is the most amazing, loving, selfish child I know. She is my first born, best friend, saved my life. I couldn't have asked for a more perfect child. She amazes me daily. She was a happy healthy child who loves school to the fullest. She did acting, gymnastics, ran, played, gets A's and B's in school. She had dreams and goals until over night it all crashed and turned into a now 3 almost 4 year nightmare. It all started 2 weeks before her 13 birthday she was complaining of knee pain we thought probably growing pains. She woke up the next morning which started are extremely 3 almost 4 year long nightmare. She woke up with a swollen leg 3 times the sz of her leg, numb and couldn't walk. We immediately rushed her to a children's hospital which they told us she may have arthritis and to see a rhemotoglist. After 2 rheumatologist saying she had hypermobility and loosen leg laxtivity we started learning and gaining knowledge on it. Then the blood work started ana positive, off the charts titer score and number from 1:80 to 1:340 within a year. Then her chest pains started, every joint in her body was affected. They've ruled out arthirts, lupus, and many more things. As the years went on she continued to get worse, her heart started getting bad, and now her eyes. My once active child is now in a wheel chair with more bad days then good. After many doctors amd hospital visits getting us no where my mommy sense kicked in and I sat and thought from the time she was born, remembering something her old ped who retired said about her hips, so my husband and I then looked at her bones and we noticed her bones didn't seem right. We went to the chiropractor and found out her bones where so out of place it was insane, so she has been going to the chiropractor 2 times a month since then. After that I wanted to switch her doctor to one that I no is amazing and would fight to find answers of how my once healthy child is now slowly getting worse each year. After switching doctors we found out she had restless leg syndrome, what we have been told as hyper mobility, myo facial pain syndrome, and pots, we decided to talk to the rheumatologist and concerned about possible eds. So we asked for genetic testing. After seeing the genetics counselor and genetic doctor they do not think at all that she has hypermobility or eds. They are looking at connective tissue disease, marfran and some other things. So as of now she has myofacial pain syndrome, pots in the heart, joint pain (as they don't no what it's from yet), restless leg syndrome, and her eyes are getting worse every year. Now she is suffering for headaches, and double vision which the eye specialist does not think it is due to her eyes. So we are looking at CT scan or mri at this point. They also want to go full force and check ever gene in her to see if there is any gene mutation. We are desperately trying to figure out what is wrong with our child who was once health and now suffers headaches, nausea, pain daily, trouble walking, bad eyes, so tired and weak at times she can't get out of bed, our child who had to give up actitives and whos teen years have pretty much been taken from her, but unfortunately this test is costing 2,500 dollars which threw us in complete shock that's not including specialist, gas, medical bills and her 6 medications she is on for her heart, joints, restless legs and etc. We unfortunately are drowning at this point and ask for help anything helps from a dollar to 5 dollars or event a pray because at this point this genetics testing is a need and hopefully answers to find a way to best help my child who had dreams goals and a future which is all now on hold because unfortunately we don't no what the future holds at this point. This is our story and our 3 year journey, Thank you for taken the time to read it.

We are only asking for what the genetics test will cost, not including medications, gas, medically bills for hospital etc. The funds will go directly to the genetics testing so we are able to get this started as it take 3 to 4 months to event get answers so we are praying to start this immediately