Aashik's son, Mrithvin, is a bright and loving 1-year-old who has recently been diagnosed with CLN1 Batten disease. This rare and devastating neurodegenerative disorder causes children to lose developmental milestones, experience seizures, vision loss, and a progressive decline in motor and cognitive skills. For Mrithvin and his family, the diagnosis has been heartbreaking, as the disease is both progressive and life-limiting, with no known cure.

There is a glimmer of hope: RUSH University Medical Center in Chicago has extended an invitation for Mrithvin to participate in an expanded access Gene Therapy program. This investigational treatment aims to improve the lifespan and quality of life for children with this rare condition. However, because Aashik and his family are international participants, they must relocate to Chicago for six months to access the program. Unlike a clinical trial, this program does not provide financial support for relocation or medical expenses, leaving the family responsible for all costs.

The funds raised through this campaign will go directly toward hospitalization and inpatient stays, including essential drugs, doctor fees, and any emergencies or post-treatment follow-ups. Your support will help Mrithvin access the care he desperately needs and give his family hope during this incredibly challenging time. Any contribution is greatly appreciated and no matter the amount will make a difference to this family, as every parent's greatest wish is to watch their child grow. We're fighting to make that possible—one step, one prayer, one kind soul at a time.