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Help Mona Heal Her Brain

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It is with great sadness but even greater hope that we set out to help our dear friend and bright soul, Mona Motwani, who is experiencing severe medical and neurological complications that have caused her to be completely disabled and need care around the clock. We are fundraising for Mona to cover her costly medical expenses and hire a full-time caregiver.

"Hello all, thank you for your generosity. Thank you for your support in helping me heal my brain, body, and mind so I can begin to start my service and my mission to the world."  Love, Mona

Mona is meeting with specialists from an amazing team of doctors and holistic healing practitioners to find out the cause of Mona’s rapidly deteriorating neurological condition and brain inflammation over the last 4 months. This  is layered on top of her longterm (13-year) battle with late-stage Lyme disease / myalgic encephalitis (ME) that have caused a myriad of other health issues. At this time, Mona is experiencing a level of suffering and a need for care that is unprecedented.

Her neurological encephalopathy and brain inflammation has gotten to a point where her brain feels like is on fire, and not responding to any medication or other relief body is reacting with seizure-like activity, uncontrollable tremors and shaking/violent convulsions in arms and legs, excruciating pain, pressure and brain inflammation that have led to several hospitalizations, dementia-like symptoms (she has found periods where she does not know where she is), uncontrolled vomiting, visual impairments, electrocutions in her nerves, fatigue, loss of feeling in limbs, confusion, hallucinations, panic attacks that last for weeks, and dozens of other symptoms which are rapidly accelerating including loss of her motor skills. Just getting down the stairs is like climbing Mt. Everest, and she needs support of a friend or caregiver to walk 2 blocks. While she has endured health challenges before, nothing has come close to the level of disability she is in now. 

Her medical team is still trying to determine the causes of her condition, and investigate  as they may be multiple, and layered on top of her complex health history creates a more challenging picture. Her medical team is ruling out MS, ALS, anti NDMA-receptor encephalitis, and other rare degenerative neurological autoimmune diseases (see below for more detail). The physical and emotional toll this is taking is unbearable. She is unable to do much on her own, except dress herself and shower, she has not been able to work, and has moved back to her parents’ home in Michigan where her almost-80 year old parents care for her. They are unable to care for her completely at their age so she needs funds to get caretaking support (which is not covered by medical insurance despite her doctor's filing for this).

As such, we are asking for your heartfelt emotional support—your love and blessings—but also your generous financial assistance, as she’s in need of round-the-clock medical care which she and her family can’t possibly bear on their own. Let’s all join together now and do everything possible to help her in every way each of us can as her condition is deteriorating and she needs us more than ever.

Listed here are the various treatments and care options available to her, and as you can see, it’s a tremendous financial burden, though entirely necessary at this time for her recovery. 


MONTHLY EXPENSES (for the last 4 months and projected next 8 months based on doctors’ estimates: 

$2300: caregiver 
$2500 (Team of Neurologists, Autoimmune Specialists, Endocrinologists, Functional/Integrative MDs, Naturopath/Homeopath), which Insurance Does Not Cover
$1200: IV treatments 
$800: Medications, Supplements, Holistic Treatment protocols, CoPays for Specialized Scans 
$450: Acupuncture and Chinese medicine
$700 EMDR and Trauma Therapy
$600 Autonomic nervous system retraining + biofeedback
$400 monthly health insurance payment 
$300 Monthly Craniosacral treatment
$600 Neuroplasticity Course and Brain Training
$700: Therapeutic Coaching and Support
$2000: General Living Expenses 

$12,550 Monthly 


Plus One Time Costs

$8000 Spect brain scans, and follow up evaluation by the Amen Brain Clinic’s top neuroscientists, neurologists, and psychiatrists over next 7 months

$20,000 Roughly for future treatments on brain as recommended by Amen Brain Clinic + neurologist (hyperbaric oxygen chamber, transmagnetic brain stimulation, PEMF, possibly IV Ketamine) + Follow Up SPECT Brain Scans

$5000 Costs associated with moving/finding long term place to have 24-7 care or home with caregiver as Mona’s Parents are unable to do so long-term


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Donations can also be made (fee-free) at Paypal: [email redacted] or Venmo - Mona Motwani. Thank you. 

Mona is a beautiful soul who has given as a humanitarian, civil rights lawyer, non-profit co-founder, and beacon of support for so many who have suffered. She spent her life working with the disabled (or specially abled as she sees it), the homeless, women who were brought into sexual trafficking rings in post-war Sarajevo, refugees, women and children victims of domestic violence, and many more. Her desire to help others has been evident from a young age, when Mona flew to India for the first time (she is of Indian ancestry) at the age of 4, she demanded her parents break her piggy bank and she took bags of pennies to India and handed them out to each person she saw on the street (despite her mother's please that this would be useless since American pennies had no value in India). Mona's desire to give back to humanity and help others, to help awaken consciousness on this planet by being in SERVICE has been known by all around her. She is operating with very little left but she keeps going because she knows that her experience with trauma + illness is meant to serve a greater purpose to help those who area also suffering all around the world. She has inspired others as a humanitarian, lawyer, speaker, entrepreneur, and most recently at her one woman performance - Monamorphosis - which inspired people to  welcome and meet their darkest emotions and experiences as an opportunity for complete transformation.  This performance was more than Mona acting out her life story on stage - it was a transmission of her heroine's journey to illuminate the beauty of feeling to healing and to remind others they can also overcome anything. Please assist Mona on the path back to wholeness so she can live her purpose of service that she has been wanting to do her whole life. 

Infinite gratitude to all those who have taken the time to read this and have opened their hearts, lending all possible assistance to Mona at this very difficult time. For those who know her well, you know what a blessing it is to bask in her sublime radiance and how difficult this must be for her, which is why we want to help her in any way possible to get through this.

More Detailed Info On Mona's Story: https://www.caringbridge.org/visit/monamotwani/journal/view/id/5fd016324d8b7100016e705e

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Donations 

  • Anonymous
    • $100 
    • 3 yrs
  • Anonymous
    • $350 
    • 3 yrs
  • robert j moy
    • $100 
    • 3 yrs
  • Rodger Bright
    • $50 
    • 3 yrs
  • Elissa George
    • $50 
    • 3 yrs

Organizer

Mona Motwani
Organizer
Farmington Hills, MI

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