Mom of 4 fights stage 4 rare blood cancer

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Mom of 4 fights stage 4 rare blood cancer

Update! Liver is covered in 80-90% tumors. Doctors gave me two months to live last month. This week doctor says I will start rapidly declining in next two weeks. Stomach is getting drained weekly because liver is not functioning. I am not a candidate for liver transplant, inoperable, cancer is metastatic. Doctors offered pain meds,hospice for me to die at home. Please I have 4 children who need me!

My name is Mallory, I am a 33 year old Mother of four beautiful children. I have been complaining to my doctors since I had my first child in 2016. I knew I wasn’t right I was tired all the time, throwing up and weak. How my world was turned upside down within 6 months, never imagined I could feel so much pain and suffering. I tried to get my life back on track after being told my tumors were not cancerous. Trying to be strong for my babies, I thought YES! We are finally getting some normalcy back and trying to live a better life. Here comes May 2022, I was feeling pain on the right side of my abdomen, while pushing my childrens stroller. I ignored it for a day or so, but on the 17th I couldn't tolerate the pain anymore and went to the doctors and had catscan performed. Within a few days I was told my tumors had spread to my entire liver and it was a ultra rare Epithelioid hemangioendothelioma, or EHE, is a rare cancer that grows from the cells that make up the blood vessels. Surgery was not a option because it was covering my entire liver with the largest tumor being 9cm and my liver was enlarged to 18cm. My spleen was also affected and was enlarged. My esophagus was thick and hurts to eat food and what I ate I throw up. Noduales in my lungs making it hard to do simple task without getting out of breathe. I was then told the my liver would take me anyday now. My doctor told me I could get liver transplant but the possibility of EHE growing in new liver was a high chance being that now this was stage 4 cancer. Patients with similar metastases or liver involvement were also reported to have a worse prognosis, with an average survival of 2.2 years. November will be my one year of when I should have been told it was EHE. The average age of onset is between 50 and 55 years, me being 33 at the time of diagnosis being a little extra rare. On August 1 ,2022 I started my first round of chemotherapy pills. Within 3 weeks the effects of the pill were severe weakness unable to walk, teeth rotted, every hair on my body hurt, entire body rash. I recently found out I have hernia and my intestines are up behind my liver. I have discovered holistic cancer treatment options. I refuse to give up. I have been through tough times and back in my life and thats ok, but I will not let this cancer take me from my kids. While I still have breath in my lungs, I am going to fight until this cancer goes into remission. My last stitch is juicing, treatments, IV Therapy, barbarically chamber therapy. The issue is cost, insurance and all treatments are out of pocket. My treatments will cost around $14k give or take, depending on how many treatments are needed. The money will help me fund the treatment , and the funds to care for my four children while I’m in treatment. I am strong in my faith and I am a strong women and I refuse to give up, I will not give up, I am unstoppable.

Organizer

Mallory James
Organizer
Hull, MA
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