Help Minja In Her Fight

We are raising money to support 10-month-old Minja Matic and her parents (Ivan and Zivka) on their journey to beat Spinal Muscular Atrophy Type 1 . The money will be used to cover medical expenses and for INNOVATIVE GEN THERAPY “ZOLGENSMA” ( indicated for the treatment of children with SMA less than two years of age-old; the product is an adeno-associated virus vector-based gene therapy that targets the cause of SMA. The vector delivers a fully functional copy of human SMN gene into the target motor neuron cells. A one-time intravenous administration of Zolgensma results in expression of the SMN protein in a child’s motor neurons, which improves muscle movement and function, and survival of a child with SMA). Unfortunately, this gen therapy is very expensive so we come here to reach people in this difficult time to help us make Minja’s dream come true.


As young first-time parents, they never thought something was wrong because all the ultrasound and blood tests showed everything was fine.
Minja was born as a healthy baby but soon after she turned 3 months, she began to regress. She didn’t move her hands much, so Ivan and Zivka visited Paediatrician which changed everything forever.
Paediatrician sent them straight to Paediatric Neurology, where after a lot of days and multiple tests in the hospital Minja got diagnosed with SMA.
As soon as they found out about the diagnosis, they prepared to fight with this disease and they knew it’s not going to be easy since SMA is very progressive.
Minja got a chance to try a medication to slow down SMA progress but, unfortunately, it didn’t work.
So we have the LAST CHANCE to try and use Genetic therapy , that chance we CAN’T LOSE.

We hope that every small contribution will help us to achieve our GOAL and OUR GOAL is to Minja sit, stand, laugh, eat and play one day.
We are all in this together and together we can change a lot.
Not just for MINJA but for all the people with SMA.