lets us give our boy a fighting chance.

Please help with getting Milo the legal expert he desperatly needs.

Milo is 13 years old. Sadly he was removed from his school in Feb 2024 due to alot of concerns.

Milo has recieve no form of any education from the LA since and continued to feel that he could still attend his school dispite medical professionals stating same concerns.

In January 2025 the LA met with medical professionals who confirmed that his medical needs cannot be met in any school setting as Milo is at the extreme end of the scales on needing highly skilled proffessionals.

This tribunal has been a very long process and sadly not the first time Milo has had to go through it.

With the LA in agreement he has to have a specialist education its the contents and how it is delivered which is crutial. Due to Milo's complex needs and medical needs there is no resbite facilities so we have cared for Milo 24 hours 7 days a week since he was removed from school. Providing him with the best education we can without any support dispite asking for it.

Its important we get it right and get Milo what he needs and not what the LA is willing to provide or wanting to provide. Therapies are key for Milo.

Many people follow Milo. For those that don't

Milo is a unique boy. He is registered blind, he has a rare condition which there are 10 casrs recorded in the world. The expected life expectancy is upto 2 years old. Milo is 13!!!

Milo has no fine or gross motor skills. He is unable to sit unaided or hold his own body weight. Milo is in respiratory failure and supported on oxygen 24 hours a day and can have time off to shower, hydro and rebound and during transfers. He is on bibpap over night. He has multiplre forms of seizures and suffers from none stop none convulsive status epilepticus. Milo cannot talk and is fed via his bowel. He has always required skill teachers and adaptaed learning to allow him to access the world around him as we believe Milo is fully aware of what is going on as he shows some signs of awareness and anticiation. Milo just lacks the tools and equipment to possibly communicate and who knows he may be the next Stephen Hawkins.

Milo was discharged from hospital in Jan 2023 where meeting had taken place where it was decided that Milo would be discharged and in their words die at home. We were told posdibly have a few weeks at best. He is still here now.

As parents we want our boy to have the same chances in live as everyone else. We do our best even with us having to become his teachers, carers and wear every hat including reading everything on law rights and battle with a system that sees our son as a drain on funds in all aspects on his life.

We have battled all his life to get him what he desreves or what has been withheld. We now need a professional to attend to support us and provide the legal expertise to ensure Milo is treated fairly aand gets what he requires.

Please help us.

We have done fundraising and currently have mission Milo running but those funds cannot be used for anything other than the adapted caravan.

Every penny helps. Our tribunal is 30th September so time is against us.

We are lucky to have found a barrister to attend that doesnt cost upto £15,000.

Milo is an amazing boy. Lightens every room he enters.

Thank you

It has been a long 19 months. We have take the LA