Help Mikayla access a Neurologist and fight FND

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Help Mikayla access a Neurologist and fight FND

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​For more than a decade, I have been living with a body that seems to be slowly declining without clear answers.

​Hi, my name is Mikayla. For the past 10–12 years, my life has been defined by a mystery health struggle. What started as severe gut issues and IBS eventually evolved into heart palpitations, chronic pain, and a fibromyalgia diagnosis. For years, my symptoms were often dismissed as "just anxiety," while I navigated the daily challenges of agoraphobia, health anxiety, and chronic pain.

​The Crisis: January 2026

​On January 3rd, 2026, my health took a frightening and life-altering turn. I developed a migraine that has never truly gone away. For over 4 months, I have lived with persistent neurological symptoms, including:

​Seizure-like episodes: These have become progressively more frequent and severe.

​Loss of Mobility: My legs shake uncontrollably, and I experience numbness from my toes to my hipss. I now rely on walking aids to move safely.

​The Breaking Point: Recently, my legs completely gave out and I collapsed. Losing control of my body was one of the most terrifying moments of my life.

​The Diagnosis: Functional Neurological Disorder (FND)

​Doctors are currently investigating FND, a condition where the brain and nervous system have difficulty sending and receiving signals. It is a disabling condition that requires specialized, multi-disciplinary care to manage.

​Why I Need Your Help

​While I am on the public waitlist to see a neurologist, the wait can be anywhere from 9 months to 4 years. My symptoms are worsening now, and I cannot wait years for help.

​The challenge is that my recovery requires more than just one doctor. I urgently need to see a team of specialists, and many of the necessary tests and treatments are not covered by the public system.

​Your donations will go directly toward:

​Specialist Consultations: Private Neurologist, Rheumatologist, and Dietitian appointments.

​Neurological Testing: Assessments and scans that are not covered by public health.

​Medication Costs: I am on multiple medications for pain, nausea, and seizures that are not covered by the PBS, making them incredibly expensive.

​Nervous System Regulation: Specialized treatments and therapies aimed at stabilizing my nervous system.

​Transport & Essentials: Getting to these appointments while navigating this health crisis.

​Thank You

​Asking for help is incredibly difficult, but I have reached a point where I cannot do this alone. Seeing my family and partner have to step in as my carers has been a heavy burden to carry, and my goal is to regain enough health to find my independence again.

​Every donation, share, or message of encouragement gives me the strength to keep fighting for my health. Thank you for taking the time to read my story.

​Suggested Social Media "Snippet"

​(Use this when sharing the link on Facebook or Instagram to grab attention):

​A 12-month wait is too long for a body in crisis.

​After 12 years of searching for answers, my health has taken a turn that has left me relying on walking aids and experiencing seizure-like episodes. My doctor is 99% sure it's FND, but the public system is overwhelmed.

​I’ve started a GoFundMe to help cover the costs of private specialists and life-changing medications not covered by the PBS. If you can’t donate, a simple share would mean the world to me.

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Mikayla De-Young
Organizer
Moana, SA
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