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Mia Nesich is a 21 year old, seemingly healthy young girl who is full of creativity and curiosity. In July 2019, she was diagnosed with Multiple Sclerosis. We thought that's mean she'd just be tired and stuff a lot, but unfortunately, it turns out that it's much heavier than that.
It started with the loss of her peripheral vision. Just all black on her right side peripheral for about a month. The doctors didn't know what it was for a while. After many doctors visits, MRIs, and blood work, the doctors finally landed on the diagnosis of Multiple Sclerosis. She had her treatment of the highest dose (1,000 mg for 5 days) of IV steroids and a few weeks later, it started coming back. It's still dark and blurry, but it's a good start.
Most recently, toward the end of September of 2019, one day she woke up and suddenly couldn't talk or walk. She checked in to the hospital, and after given an MRI, it shown that she has a new lesion on her cerebellum, which is why she couldn't talk or walk. All of her balance and coordination was gone. She couldn't eat, text, type, anything on her own. She stayed in the hospital for 10 days, with a lot of physical therapy and speech therapy. Three hours a day every day, and for someone who couldn't form a whole sentence, let alone a single word, that's a lot. She is home now and is able to use the stairs and carry things when she walks, but it's only a matter of time before something else happens again, and worse than this flare up.
MS is an autoimmune disease that attacks the brain or spinal cord. With most autoimmune diseases, they let it deteriorate and then revive it, like psoriasis or diabetes. With MS, there is no cure. Mia's MS attacks her brain, so we can't let it deteriorate. The myelin (coating around the nerves) in her brain are attacking themselves in different parts of her brain, which cause lesions. The lesions cause damage, i.e. her partial blindness and her being unable to walk or form words.
She now uses a shower chair, does outpatient physical/speech therapy, regular hospital/doctor visits, and soon will be starting a regular IV treatment of Ocrevus, which will ease her flair ups, all of which are expensive.
With your help, we can be able to afford Mia's physical and speech therapies, her regular IV treatments, and other accommodations like a cane and shower chair. We're hoping her recovery from the last one comes quickly and stays like that for as long as possible of course.
Anything helps. Help this young girl have an easy, steady, long future, with full use of all of her limbs and voice, things we all take for granted. Thank you.
It started with the loss of her peripheral vision. Just all black on her right side peripheral for about a month. The doctors didn't know what it was for a while. After many doctors visits, MRIs, and blood work, the doctors finally landed on the diagnosis of Multiple Sclerosis. She had her treatment of the highest dose (1,000 mg for 5 days) of IV steroids and a few weeks later, it started coming back. It's still dark and blurry, but it's a good start.
Most recently, toward the end of September of 2019, one day she woke up and suddenly couldn't talk or walk. She checked in to the hospital, and after given an MRI, it shown that she has a new lesion on her cerebellum, which is why she couldn't talk or walk. All of her balance and coordination was gone. She couldn't eat, text, type, anything on her own. She stayed in the hospital for 10 days, with a lot of physical therapy and speech therapy. Three hours a day every day, and for someone who couldn't form a whole sentence, let alone a single word, that's a lot. She is home now and is able to use the stairs and carry things when she walks, but it's only a matter of time before something else happens again, and worse than this flare up.
MS is an autoimmune disease that attacks the brain or spinal cord. With most autoimmune diseases, they let it deteriorate and then revive it, like psoriasis or diabetes. With MS, there is no cure. Mia's MS attacks her brain, so we can't let it deteriorate. The myelin (coating around the nerves) in her brain are attacking themselves in different parts of her brain, which cause lesions. The lesions cause damage, i.e. her partial blindness and her being unable to walk or form words.
She now uses a shower chair, does outpatient physical/speech therapy, regular hospital/doctor visits, and soon will be starting a regular IV treatment of Ocrevus, which will ease her flair ups, all of which are expensive.
With your help, we can be able to afford Mia's physical and speech therapies, her regular IV treatments, and other accommodations like a cane and shower chair. We're hoping her recovery from the last one comes quickly and stays like that for as long as possible of course.
Anything helps. Help this young girl have an easy, steady, long future, with full use of all of her limbs and voice, things we all take for granted. Thank you.