
Help Megan regain her life and independence
Donation protected
Many know my cousin Megan, and although she is normally a very private person she is in need of community support during a very difficult time. Megan is the sweetest person who has had a difficult three years.
In January of 2018 she took a misstep down a set of stairs and broke her heel, and her life hasn’t been the same since.
For months she dealt with excruciating pain that prevented her from partaking in activities of daily living, prevented restful sleep, and robbed her of normalcy. She was ultimately diagnosed with complex regional pain syndrome (CRPS). Conventional medical treatments and procedures unfortunately did not improve her pain. After exhaustive research she found The Spero Clinic in Arkansas which specialized in this type of debilitating pain, but it was four hours away from her home in Kansas. The treatments were expensive, not covered by their insurance, and she had to live apart from her husband. Miraculously after six months of treatment her CRPS went into “remission” and her quality of life improved dramatically.
She returned home to Kansas and for the next two years she maintained her improved quality of life. Unfortunately 2020 started a year that was going to prove to be one of her most difficult yet (as it was for so many!). At the beginning of 2020 she had a colonoscopy, followed by dental work, followed by a severe virus with lasting symptoms from March 2020-May 2020 which concluded with her breaking her other foot. By the Fall of 2020 she started to experience a multitude of gastrointestinal symptoms and by March 2021 she experienced such severe esophageal dysmotility that she could not even swallow puréed food. All of the muscles on the right side of her body weren’t working. The next step was to insert a feeding tube.
In desperation she contacted the clinic in Arkansas that helped her so much in 2018 as again conventional medical treatments and medications were not helping. She returned to Arkansas in March 2021 where she has remained until today. From there she has seen several specialists in Nebraska and North Carolina who diagnosed her with ehlers-danlos syndrome which affects connective tissue - essentially connective tissues and the nervous system are not synched with each other. Again, these non conventional treatments with chiropractors specializing in neurology and the immune system have helped her immensely.
Her medical team believes her treatments will continue to help improve her quality of life but continue to be paid for 100% out of pocket. They have gone through their life savings and retirement paying not only medical bills but also a second residence in Arkansas. Megan’s husband is in the Army and needs to remain in Kansas where he is stationed.
Their family and friends have been able to provide assistance but at this point the financial resources available to them have been depleted and they desperately need to ask for additional help. Please consider donating to help Megan regain her life and continue the treatments that have helped her. Raising funds to cover her treatments and some living expenses will allow her to focus on becoming well and alleviate some of the intense stress she has been feeling over the last eight months wondering how they will afford to continue. If you are able, she would appreciate any contribution, sharing this with your friends and family and keeping her in your thoughts and prayers. She thanks you from the bottom of her heart.
Organizer and beneficiary
Alison Breen
Organizer
East Hampton, CT
Megan Simone
Beneficiary