Hi, my name is Elizabeth Rajsner a 29yr mother to an incredible, miracle almost 2yr boy. I have been battling chronic & genetic disease, with the past ten years being more and more challenging. Myotonia congentia, POTS, hypokalemia, hypophosphatemia, kidney disease, restrictive lung disease, neuropathy, gastroparesis, anemia, prenacious anemia, neurogenic bladder, SVT, and chronic pain are just the diseases I’m currently diagnosed with, while additional testing by a neurogastroenterologist begining in February may uncover even more diseases. This being said I face many, many obstacles navigating motherhood while dependent on a walker/cane, stairlifts, a daily attendant, and TPN with a daily IV of phosphorus/potassium to help me live...the latter two unfortunately have brought astronomical bills I’m struggling to afford at $10,000 for mere supplies after Medicare for a mere 7 months. The fact that as of now being removed from treatment would put me back into refeeding syndrome and result in a very gruesome death due to starvation in a year or two this debt is only going to dramatically increase.
This mommy is desperately trying to live out what life she can to see her son grow up without completely bankrupting her entire family to do so. I am ever so grateful for any donation or share!
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