Help me get treatment, if you can

I was holding out doing something like this because I know its quite a big deal when you need to ask for help like this.

 

So before I go into it, I'm fully aware people use platforms like this to help with funeral costs and life saving treatments.

I admit I'm rubbish at saving money. I like to go out occasionally and enjoy life, I refuse to stay indoors because I look sore or I don't look like my normal self. I need to carry on in life, even if I'm struggling and pain. I am human. So anyone thinking judgy or negative comments, please keep to yourself.

 

Ive been suffering with this condition on/off since April 2019. I have eczema, the steroid creams stopped working, my skin was dependent on it. I stopped using steroid creams and my skin went crazy, I stopped working for 4months and couldn't take it anymore and went back on steroid creams. Then they stopped working again. And eventually I found out I was allergic to an ingredient in steroid creams. What was I prescribed next?.. More steroid creams. Most dermatologists and gps are not aware of Topical Steroid Withdrawal. When the steroids don't work anymore. But it was too late i was way beyond dependent on them.

Last year April, I made the decision to stop steroids completely in 15yrs + . I'm proud but it's been another year of hell, depression, dark times and suicidal thoughts.

 

Friends, family, my boyfriend and even people I barely know have kept me going though. So thank you!

 

TSW is a shitty waiting game. There's no immediate cure. It's not just fix your diet, meditate and relax and your fine. No. It's so much more.....you're withdrawing from a drug, that's fucked your nervous system, thinned your skin, made you more sensitive and caused so much damage in general. This could have been preventable if the route of the cause was investigated first. But hey maybe things happen for a reason right.

 

Here's more info on the condition:

 

www.scratchthat.org.uk

 

There's a treatment centre in Andover, called Skin Solace Clinic. They are offering treatments to help TSW sufferers like me and others. To break it down, it's £80 per session. I need to go once a week for 3months. So that's nearly £1000. And it's about £30 return train. I don't need every penny covered, just whatever I can get.

Edit:I've increased to £1300


Edit: I will need to keep going every week for another 3months or so which is the reason for restarting donations.

 

www.skinsolaceclinic.co.uk

 

Check the website for more details.

 

I am doing my bit to put my own money towards this too, spending less, cooking more etc.

 

I've reached a point of desperation. I want to wake up one day and not panic thinking how bad have a scratched my face. I want to stop hiding under my cap and sunglass and face masks. I want to stop being in pain and just be comfortable. I want to be me again.

 

I will document everything as much as I can through my eczema [email redacted]ema.tsw.warrior and keep it updated. I will be as transparent as I can using funds raised for treatment only. Any money left over I will donate else where.

 

If you are in a position to help Thank you! If you are not thank you also because just reading this and sharing helps to.

 

I've summarised quite abit on my story but you can refer to my instagram for my videos etc if you like.

 

Thank you in advance. Xxx