Help Me Get the Surgery I Need for Severe Endometriosis

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£4,965 raised of £10K

Help Me Get the Surgery I Need for Severe Endometriosis

Hello everyone,

My name is Rahima. I never imagined I would have to ask for help like this, but my health has become urgent and I don’t have enough time to keep waiting for surgery under the NHS.

I have suffered severe period pain since I was only 8 years old. Growing up, I was repeatedly told it was “just a bad period.” I was given different medications, but they either didn’t work or caused very long periods, very frequent cycles, or intense bleeding. For years I have lived in pain that no one could explain.

My periods are extremely irregular and frequent. Sometimes I have multiple periods in one month, spotting between cycles, and severe pain even before bleeding starts. The pain is so intense that I sometimes faint or pass out. There have been times I have been unable to walk, unable to stand, and completely unable to function because of the pain.

In June 2025, an ultrasound scan found Endometrioma kissing chocolate cysts. These are cysts that have joined together and filled with old blood caused by Endometriosis growing on my ovaries. They can damage the ovaries, block the fallopian tubes, and affect fertility.

Endometriosis is a chronic and progressive disease where tissue similar to the womb lining grows outside the womb. It causes inflammation, scarring, organs sticking together, and severe pain in the pelvis, back, and legs. It can also affect the bowel and bladder.

I have always wanted children. I have always seen myself as a mother. Becoming pregnant and having a family has always been one of my biggest dreams. Right now, my fertility is all on hold because of my condition, and every delay risks causing more damage to my ovaries and fallopian tubes.

In November 2025, my pain became so severe I was taken to A&E and could not walk. I spent days in hospital on morphine and codeine. That experience has broken me emotionally and physically and has shown me how serious my condition had become.

In December 2025, I had an MRI. It showed that my condition is now even more severe than originally expected. I have Endometrioma cysts affecting my ovaries and fallopian tubes, Adenomyosis inside my uterus, adhesions where organs are stuck together, and suspected endometriosis on my bowel. Adenomyosis is when the lining of the womb grows into the muscle wall of the uterus, causing very heavy, painful periods and constant pelvic pain.

The MRI also showed new cysts that had already grown to 3–4 cm within months. This shows how quickly my condition is progressing.

When I met my consultant on 05/02/2026, he told me my case is ‘one of the most severe they have seen in a very long time’. He also explained that because my fallopian tubes are badly damaged and affected by endometriosis, they are likely to be removed during surgery. This means I may not be able to conceive naturally and will need IVF in the future to have children.

Trying to process this possibility, alongside severe pain and the fear of losing my fertility, has been emotionally overwhelming. I am doing everything I can to preserve my fertility and have surgery before more damage is done.

I have spent years going through medications, scans, and appointments through the NHS. I have been chasing my surgery date constantly and have repeatedly been told to wait another 21–22 weeks. As of January 2026, I was told to wait 33–43 weeks. I have already been waiting 33 weeks with no confirmed surgery date. But endometriosis does not wait and it does not discriminate. If I keep waiting, the cysts will continue to grow, scar tissue will worsen, organs may be permanently damaged, and my fertility may decline further. The NHS has disappointed and failed me.

As my bowel is involved, the surgery is more complex and must be done by an endometriosis specialist where a bowel surgeon is also likely to be present. This makes the surgery much more expensive. I have managed to save half of the cost myself, but I am struggling desperately to save the rest while managing my health. I feel like I am losing my mind trying to gather enough money before my condition gets worser.

Without this surgery, I face:
• Increasing daily pelvic and back pain
• Larger cysts and more internal damage
• Greater risk to my fertility
• Possible bowel complications
• A worsening quality of life

Not a day goes by where I am not in pain. My surgery and recovery will take time, and I live with constant anxiety about my health, my future, and whether I will still have the chance to become a mother.

For a living, I support vulnerable people through difficult times with their mental health. Asking for money is incredibly hard for me, but I am asking because I truly need help to protect my health, my fertility, and my future.

In total I have been quoted over £10,000 for surgery, I have got half of this money but still need your help! Any donation, no matter how small, or even sharing this page, would mean more than I can express. Every contribution will go directly towards my surgery and recovery.

Thank you for taking the time to read my story and for any support you can give.

With love and gratitude,
Rahima

Organizer

Rahima Begum
Organizer
England
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