Help Me Get My Liver Transplant

I have polycystic liver and kidney disease. In Dec of 2011, I suffered a very large bile leak during a surgery to try and relieve my discomfort from the numerous cysts on my liver. I went back into the hospital with a collapsed lung, in great pain, and was very, very sick. I had to get blood infusions, nutrition through IV, my lung aspirated, and a drainage tube placed. I spent Christmas in the hospital that year, but my loving family postponed Christmas until I was released from the hospital a week later. That first year, I was in and out of the hospital about 10 different times, and experienced my first infection, requiring a picc line to be placed in my arm for IV antibiotics at home. Over the years, I had to have so many picc lines (10, I think), they were starting to constrict my veins, so I had a port placed in my chest in 2015, and that has made things a bit easier. I lost my job with San Diego Unified School District that first year too, but had fortunately paid for private disability, and was able to receive that for 18 months. When I could no longer receive disability, I took a part-time job back with the District. I loved working there - I earned good money and had great benefits for myself and my family. But between hospitalizations, appointments, medical procedures, and generally being unwell, my health issues at that point made me unreliable at best. I was laid off in June due to budget cuts, and have not yet been able to accept any further employment. Ever since the bile leak, I have had chronic bouts of life-threatening sepsis and bactetemia. After six years of assorted imaging procedures, the source has still not been identified. I have begun to fail antibiotics, so each infection I get has the possibility of being my last. My medical team decided that a liver transplant is the only thing left that could save my life. I have been listed for a cadaver liver at UCSD, but because my case doesn't match the typical liver transplant criteria, my MELD score is very low, and so are my chances of ever receiving a liver in time. I am currently receiving my health insurance through COBRA, but because I have to go out of network and they consider it a second opinion, I am not covered until I have been evaluated and accepted on the transplant list at USC's living donor transplant center. The two initial consults and preliminary bloodwork costs about $2,000, and if they agree to move forward, the evaluation process costs approximately $17,000 - $22,000, based on how many tests/procedures they need to do in order to decide if I am a good candidate for a living donor transplant. If I am found to be a good candidate, the process of finding the best possible donor match begins, which also is not covered. Then there is gas and other travel expenses, and probably things I'm not even aware of yet. I am not the type of person who is comfortable asking for help...I am much more comfortable finding resources for others to receive help. But at this point, it is literally a matter of life and death...and so I humble myself and ask that anyone who feels compelled to do so, please donate anything you can afford to help me on this journey. And whether you're able to donate or not, please share this with as many people as you can...help me get my message out there, and hopefully there are people out there that feel moved to help. I have three amazing children, four grandchildren whom I adore, and one on the way. I want to be here for them, and help guide them through the trials of life as long as I can. I want to be able to go back to work full-time with the District, preferably back at an elementary school, where I can make a difference in the lives of the children. Thank you for anything you are able to do to help, and God bless you all.

Donations

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  • Sue Talmadge 
    • $20 
    • 29 mos
  • Katie Sticka 
    • $25 
    • 29 mos
  • Stacy Lewis  
    • $25 
    • 33 mos
  • Lori Cruz-Watkins 
    • $25 
    • 34 mos
  • Rosemary Cameron 
    • $25 
    • 36 mos
See all

Organizer

Jami Hampson 
Organizer
Spring Valley, CA
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