- A
Help Me Fight CNS Lupus damage & Receive Oral Surgery: A Plea for Urgent Medical Support
First, thank you from the bottom of my heart for simply taking the time to watch this video and read my story.
My name is Maria and I am currently fighting a severe and fast-moving form of Lupus that affects the brain and central nervous system, known as CNS Lupus — also referred to as Neurological Lupus. This condition is often misdiagnosed, misunderstood, and tragically, it progresses rapidly.
Latest Update YouTube video December 31st 2025
YouTube video update as of December 31st 2025
Please click Thank you so much
Click above or copy paste link
Update Aug 11th Last week we received bad news that must be taken care of by end of year 2026 now...otherwise implants will need more bone graphs and be more expensive. Due to Lupus infections have remained and my mouth, ears and nose have been affected. Now we must rush because the risk of more infections, then fear of them spreading to the bone, or cause facial bones to collapse and infections can reach the brain. I am using all natural ways to hold this off till we have the funds for the procedures needed. But end of year is a hard deadline that must be met to keep things less expensive. As it is in the USA they want $67,000.00 I am willing to go out of the country or go with service for uninsured low income which still leaves us at $15,000.00 to $20,000.00. I unfortunately am behind and now have less food options etc.
Right now, I’m facing an overwhelming health battle. My symptoms have intensified to include seizures, debilitating circulation problems, lung inflammation, and nerve damage that has greatly impacted my mobility and independence. I feel as though I am being robbed of the time I have left — trapped in a body that is deteriorating quickly and in relentless pain.
Update AS OF MID SEPTEMBER intestinal infection was healed naturally. Funds were used for herbs and tests. Still on liquids and herbs and soft foods. Due to jaw and oral issues eating is difficult. Bone loss is occuring.
Mentally I am at my best and determined, my faith is at it's highest, I am gaining mobility, I am pushing through and doing everything from intense meditation sessions, to days of silence, salt baths, therapies I can afford, strict diet, open hearted and helping others.
I am now being a voice, of how healing trauma and being aware of the dangers of the medical system as well as the benefits of science, as well as the all natural route and the importance of combining it with diagnostics. I am sharing my story to help others and I ask you to please help me get this Win. I shall keep shining and paying it forward.
seizures/Neuro storms are also stabilized as are tremors until today 10/2 ai have twitching today and uncontrollable movements due to stress yes, so breathing and meditating.
Back to the original
This fundraiser is deeply personal. It’s organized by me and my daughter, who is not only my biggest support but also an essential part of my daily care team.
Why We Need Help:
· Living in &: Overcoming constant pain: Every day I wake up facing a cycle of symptoms — vomiting, tremors, shortness of breath, hives, skin inflammation, chest pain, heart palpitations, neuropathy, migraines, gum pain, and cognitive issues. This is no way for anyone to live. Stable medical care could reduce this agony and preserve what’s left of my health and quality of life.
· Loss of independence: My ability to walk is impaired due to extensive nerve damage and circulation issues. I now rely on a cane and fear further loss of mobility. My goal is to remain as independent as possible for as long as I can. This is why my update was important. My therapies are key. Please do support keeping me moving and serving.
· Oral health emergency: CNS Lupus is now affecting my oral health. I’ve already lost several teeth, making eating — and maintaining proper nutrition — incredibly difficult. Poor nutrition only worsens Lupus symptoms, creating a dangerous cycle.
The Necessary treatment For Lower Face Oral Surgery
Importance of Sinus Lift and Bone Grafting:
• Dental Implant Placement: Insufficient bone in the upper jaw can make it challenging or
impossible to place dental implants securely. Sinus lift and bone grafting procedures help create
a suitable bone environment to support the placement of dental implants, increasing the
chances of successful implant integration and long-term stability.
• Enhanced Aesthetics: Adequate bone volume is essential for achieving natural-looking and
harmonious dental implant restorations. Sinus lift and bone grafting procedures can help restore
facial contours and improve the esthetics of the smile.
• Preserving Facial Structure: When teeth are lost or extracted, the jawbone can start to
deteriorate and lose its volume. Sinus lift and bone grafting procedures help prevent further
bone loss and preserve the structure and integrity of the jawbone
1. Sinus Lift (also known as a sinus
augmentation or sinus elevation): The
maxillary sinuses are air-filled spaces
located behind the cheekbones and above
the upper jaw. A sinus lift involves lifting
the sinus membrane and placing a bone
graft in the space between the sinus floor
and the jaw to increase the amount of
bone available for implant placement. The
procedure is typically performed when the
sinus floor is too close to the upper jaw, making it impossible to place dental implants without
additional bone support.
Bone Grafting: Bone grafting is a procedure used to add bone to the jaw, enhancing its volume
and density. It involves taking bone from another part of the patient's body (autograft), using
bone from a donor (allograft), or using synthetic or animal-derived bone material (xenograft).
The bone graft is placed in the area of the jaw that requires additional support and serves as a
scaffold for new bone growth. Over time, the graft material fuses with the patient's existing
bone, creating a stronger and more stable foundation for dental implants.
· Misdiagnosis and delays: Years of being misdiagnosed have cost me precious time. We are now in a race against the disease's progression. Multiple appointments with specialists are necessary to understand whether new symptoms are from Lupus or other conditions it may have triggered — a common issue with autoimmune diseases. These appointments are urgent but come with overwhelming financial strain.
· Neurological decline: CNS Lupus is attacking my brain. I experience severe migraines, memory loss, and inflammation of the brain. We are currently awaiting results after a suspected seizure, and I live with the terrifying possibility of spinal cord damage and future cognitive decline.
· Loss of vision: I am already legally blind. Past chemical burn pain and frequent optic neuritis have taken a huge toll. Each flare-up threatens to take what little vision I have left.
· System breakdown: The back-and-forth trial-and-error approach of the current medical system is not working. I am desperate to establish consistent care with a specialist experienced in CNS Lupus — someone who can create a comprehensive treatment plan before more damage is done.
What Your Support Will Do:
Your donation will go directly toward:
· Appointments with specialists and diagnostics
· Ongoing pain and symptom management
· Urgently needed dental treatment
· Mobility aids and home support care
· Life-preserving medications and treatments
· Vision care and neurological monitoring
As well as help me share my story, my experiences and resources found, my faith and this precious win.
I love life, and I want to continue living it — not just surviving, but experiencing these years with dignity, mobility, and memory. But I can’t do this alone anymore. I’m reaching out because time is not on my side, and the financial burden of this battle is one we can no longer carry alone.
From my heart, thank you for any support you are able to give — whether through a donation, a share, or a kind word. Your compassion could truly help save my life.
With gratitude, Maria your Shakti DeviMea