Help Me Try And Beat An Incurable Rare Cancer.

Help Me Cure My Cancer.

Hello! Wow, okay…

Where to start…?

Hi,

I am a 26 years old creative that has always been interested in Health and Wellbeing.

For a good amount of time -in my past- I had the pleasure of Living in Hawaii. (Maui and Big Island) .

In this time, I had the opportunity to grow my own food and eat the purest most organic food, as well as being able to drink the cleanest water from Iao Valley, or water-catchment systems on Big Eye.

This.

I knew in this moment, that this was by far the healthiest I have ever been in my life.

I lived : “The dream!”

Well, I’ll be the first to tell you that things aren’t always as great as they seem. Especially from social media or small talk.

When I returned to London in 2021, I noticed that things started to change. I mean, I was still vegan and attempted to stay “healthy”…

I still consumed a variety of vegetables …as well as processed vegan foods. (I mean…it’s the city!)

But I noticed I lost a lot of energy that I used to have. I was out of breath more often… I was constantly getting migraines - and my god THE HOT FLUSHES!?

Less than a year later, at the hospital I had landed in, I was told I had something called Pheochromocytoma.

Sorry but…What on Earth is that?

Was my first thought.

Turns out I am not the only one to quirk an eyebrow when first hearing that name. Even Doctors react in a similar manner. (Some were unaware of the disease in the first place.)

Pheochromocytoma is a type of tumour that is found / created from the adrenal glands.

At the time when they found it, I was told it was small, benign and on my adrenal glands.

I then received a Key-hole surgery on 02/02/2022. (2/2/22-Very easy for a girl into angel-numbers to remember!)

They told me it shouldn’t come back. It’s super rare and they were lucky to catch it when they did.

Well.. In late 2022, I noticed the symptoms were back again and after countless A&E visits (again), I was finally re-tested.

They realised the tumours were in fact back and this time it seemed to have moved to a in a section of my liver.

Okay… I mean, the probability of having the first diagnosis, (at my age) was apparently 1 in a million.

The chance that I would need a second surgery for “other tumours”, was 10% of that 1-in-a-Million.

In other words, an even smaller rarity.

So on 03/03/2023

(3.3.23 - No I didn’t choose my surgery dates I swear!) I received Major Surgery on my liver.

When that was over with, I tried to move forward with my life…

It’s now 2024 and it’s back again.

It’s “all over my liver” and “it’s metastasised to my 6th Rib.”

There’s no denying it anymore…

“It’s Cancer.” The Doctor told me. “And this type of Cancer, has no cure.”

That’s what I was told in the doctor’s office a few weeks ago.

“What can I do?!” I responded. “There HAS to be something…?”

I pleaded to a new Doctor, a Doctor I had never met before, who showed little empathy or care.

She was merely the barer of bad news.

Though, I needed to figure out a solution - fast.

I pleaded not for myself but for the tears of my loved ones around me. For the pain they felt from hearing this. For the gripping of chests and the avoidance of eyes.

I just wanted this to end.

So, I tried.

I tried to give myself a fighting chance on paper.

Unfortunately, neither I, the specialists or the private doctor we paid for, could find a loophole.

It was the same diagnosis no matter what.

Incurable Cancer

“There are treatment options!”

The first doctor had initially gave me the option of Chemotherapy or Radiation. She also handed me a pamphlet that might as well have said “Chemo 4 Dummies”.

She then reluctantly told me she would give me a couple of weeks to make a decision.

Though - a few days after, I was lucky enough to speak to the members of my new team.

(This was now my new medical team, as I was transitioned to a different section within my hospital).

I spoke to my lead doctor and specialist nurses. I was given the option to try a new trial treatment, which currently after discussion and statistics, we realised is the best option.

It’s called PRRT therapy. It’s not as aggressive as Radiotherapy or Chemo as the nature of this therapy is to ‘freeze’ the tumours. (Though the after effects can still be similar)

The thing with this rare cancer is… There’s no current way to medically or scientifically kill these tumours.

There’s no way to create remission scientifically…I mean, they can attempt to slow down the process as much as they can.

Before you ask, yes, I already asked them how much time I have left… and what’s the likelihood of it working for a long while… And ..

They don’t have an answer.

Not only because it’s so rare but because everyone’s body reacts differently.

I also need to consider, that this treatment also doesn’t magically work for everyone too.

**

Through this time period, I have spent the last 3 years, having to leave jobs and start jobs in an endless cycle. Due to hospital visits, surgeries, medication side effects etc etc…

So I’m struggling.

It’s actually ironic… I was offered a role that I was really excited for recently and I accepted.

Two days later after the job offer, I got the diagnosis.

I am expected to be starting The PRRT treatment around January (due to financial and admin delays within the NHS).

Though, they said it looks promising and the delays of treatment should stop by January, it’s not entirely guaranteed that I will be able to receive PRRT. Or that it will work for me.

A constant reminder, that my body may not even react positively to it.

(There is also a chance it could unintentionally progress the speed of the tumour growth)….

What I’m trying to say is; I’m scared that I am running out of time.

Lot’s of people used to tell me that I would do something special.

I am a creative at heart and I love creating new possibilities.

I could tell you about my love for film and acting, I could tell you about my drive for story telling and creating new ideas….

Through, right now, I think it’s important to mention my new found love…Chess.

I know. This sounds irrelevant but I promise, there’s a point.

Through this new found addiction, I have learnt 3 things thus far when it comes to chess.

1. Focus on developing the centre.

2. Focus on the end goal. Plan your moves accordingly.

3. Even if you don’t see it yet, be patient, there is always a way out.

And then, it hit me.

1. If I focus on developing the centre: The root of the problem, the centre of my body… I need to focus on stopping the cause.

2. Plan your moves accordingly: By focusing on what I need to achieve, by creating steps towards the end goal, it can lead into planning towards the right direction.

3. Self explanatory: There is always a chance, on that little board and those little squares of finding a way out.

So here it is…

My Target.

The whole reason I created this Go Fund Me in the first placе;

I believe I can heal my body.

There I said it.

Call me a conspiracy theorist but not only do I believe I can do this, I will.

It’s my last shot…

No one has ever found a cure for this particular cancer (on paper): Pheochromocytoma Metastasis (malignant). Though, with it being so rare - and for my age range etc… it was a 1 - in a - 100 Million chance that I would get this.

And you know what, I’d like to believe that if I actually developed something (that's non hereditary- yes it’s been checked) that is that rare, I can also be the person to find the cure for this.

Because Just like chess, I believe, nay, I know - there is always a way out.

Here’s my plan broken down into rough steps:

Step 1) Go to Bali for a year. (I would love to go back to Hawaii and farm organic food on the Āina again but I also really wish to respect the land and to leave it be for now.

As maui - Lahaina especially, is still recovering itself).

So, Bali. This would ideally be after my first set of Therapy -. (177 Lutetium Octreotate- PRRT)

Step 2) Committing to a purely alkaline diet.

I know - I know, this may sound a little hippy-dippy or a little too holistic… But what I also know, is that through organic vegetables, fruits, clean water, cleansing etc… I have a strong chance to help my body to repair itself.

Step 3) Take another scan to see if the holistic aspect is working.

Funnily enough, as I mentioned, the PRRT treatment cannot shrink the tumours (as it is impossible), it can only slow it down.

So if there are any shrinkages or tumours disappearing, I will know that not only are my methods working but my body would have started to, do the so called: impossible.

Step 4) Complete healing. I doubt this should take longer than a year, but I shall give myself 2 as a target.

Step 5) Write a book. This is where my love for writing can really shine!

I love writing.

If I create the ability to cure myself, I promise to also create a book showing every method and practice I used in order to make it work. Naming it something like: How I beat Incurable Cancer. (Please note, logically, the steps I am taking should be technically applicable to all cancer).

Step 5: Creating My Own (Very Affordable) Retreat Centre.

For Cancer patients all over the world. Where we can attempt to practice healing, in a holistic and scientific way. (Trust me, I’m not telling people to ignore the medicine, I’m saying maybe if we incorporate both we have an actual fighting chance!).

I think we spend too much time as a society, thinking everything is so black and white. Feeling like we must pick a “Side”.

In my opinion, I think that slows us down. I think when there is huge disparity within two groups, be that with any cause there are things to learn from either side… The more we can open ourselves to incorporating all methods, working together : with each other (not against) the quicker we truly heal together. Literally and figuratively.

Yes, I’m aware at this point, I’m getting ahead of myself but as a person who is 1 in 100 Million. I promise to make your donations count. So, please help me fund this idea, for not only my life but the potential to help others too.

I promise with every iota in my body, that I will always be 100% honest with my results and findings along the way.

So, even if it doesn’t work.

I will still write that book, or an article …etc.

Putting an end to the age old question of : Holistic or Science?

Let’s hope it’s both?

If you have the time to donate, please, help me be a part of that.

Every Little Helps!!

Thank you.

The date I will aim for is 04/04/2025, following the numerology of my Surgeries. Let’s hope, now that we are doing this together… 3rd time could really be the charm. ♥️

ily.