Hi, my name is Corey. I am a very severe bedbound ME/CFS patient also diagnosed FMS, CEBV, CEV, MCAS, POTS, Autonomoic Neuropathy and suspected SFN and EDS. I currently can not sit up in bed long enough to finish a meal without my pulse going above 110 and becoming extremely fatigued. Most days it is all I can do to speak. There is no playing games or watching TV or listening to music. I am too sick and do not have enough energy to do anything fun let alone function. It is possible in the future I may need a feeding tube due to gastroparesis.

 

I am spending thousands monthly in medical debt and bills from an ER visit back in June 2021 that did not even help me, but instead harmed me. I am spending hundreds a month on medications just so I can sit up in bed for a few minutes at a time. But the bills are stacking up. And the weight of them is comparable to the crippling fatigue I endure day in and day out.

 

Please help me. I can not imagine what will happen if my family loses the house or even be unable to afford food.