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I have severe Ehlers Danlos Syndrome, which after a trigger in 2012 sent my body into a crisis.
In 2014 my legs stopped working, my spine became wobbly and my neck would no longer hold up my head. Added to that my other associated medical conditions became much more obvious and disabling.
As a result I have been unable to move or care for myself and have been confined to my bed and my room for two years. I only leave it to go to appointments and then I need an ambulance and a stretcher.
I need to raise funds to purchase a powered wheelchair which will lie flat, but will still allow me to power myself around the house, out into the garden and eventually give me independence to travel to my appointments with my parents.
I also need to raise funds to aid my treatment, travel and rehabilitation.
In 2014 my legs stopped working, my spine became wobbly and my neck would no longer hold up my head. Added to that my other associated medical conditions became much more obvious and disabling.
As a result I have been unable to move or care for myself and have been confined to my bed and my room for two years. I only leave it to go to appointments and then I need an ambulance and a stretcher.
I need to raise funds to purchase a powered wheelchair which will lie flat, but will still allow me to power myself around the house, out into the garden and eventually give me independence to travel to my appointments with my parents.
I also need to raise funds to aid my treatment, travel and rehabilitation.
Organizer
Erinna Pilbeam
Organizer

