Hi, I’m Lisa, I’m 41. I live with my husband Sam and our four children, Freddy, 13, Luca, 10, Kitty, 8 and Max, who is just 4 years old, in Wiltshire, UK. In June 2020, mid pandemic, I was diagnosed with colon cancer, which has now spread to my peritoneum, liver and lungs. I need help raising funds to add an extra chemotherapy drug to my treatment which is not available on the NHS and to help fund additional integrative healthcare treatments that I want to access, again which are not available on the NHS.
I have set up this page to share my story and to get help to utilise every available resource against cancer. With people reaching out to me and my family offering support, this may be a way that you could contribute, and any donations would be sincerely appreciated.
When I was first diagnosed in June 2020, I had immediate surgery (R-Hemicolectomy, which showed a T4N0M0V1 tumour). I had been largely asymptomatic except for being found to be severely anaemic earlier in the year after a blood test, and just started to develop intermittent episodes of swelling in my abdomen during the spring. After recovering from the operation, I subsequently completed 6 months of XELOX chemotherapy and my family and I hoped with all our hearts that it would be the end of my cancer journey.
Sadly, this wasn’t to be, and in October 2021 I received the devastating confirmation that my cancer has spread, and is now in my peritoneum, liver and lungs. I have also found out that my tumour carries the BRAF mutation, making the cancer more aggressive and even harder to treat.
The initial plan is to try some chemotherapy to shrink the cancer with the hope of surgery to follow if the tumour responds, so just before Christmas it was straight into round 1 of FOLFOXIRI. After one cycle however my tumour markers are still on the up so on the advice of two different oncologists, we’ve decided to try adding the chemotherapy drug Avastin to my protocol. This would be standard treatment in the USA and mainland Europe, but in the UK, it’s not currently funded by the NHS and so only available privately at a cost of around £2000 per two weekly cycle. So a cost of £12000 for a 3 month course.
With a background working for the NHS running oncology trials I have dedicated hours of time researching to understand up and coming treatments, new science, standard care in other countries, and also investigating additional integrative health treatments that I really want to access, all of which however come with a fairly hefty price tag. I believe following an off-label drug and supplement protocol, as well as adding IV Vitamin C and HBOT therapy, alongside my standard treatment will be very beneficial and could enhance my response to treatment.
I can’t put into words how appreciative my family and I will be of any support that you are able to offer. Any money raised on this page will only be used for treatments that I believe will offer me a chance at beating this disease. Any surplus funds would be donated to Bowel Cancer UK.
Thank you for taking the time to read my story.