Help Me Access Life-Restoring Medical Device

Living with EDS and POTS, this fund would cover a Lumia 2 device purchase

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15 donors
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$1,450 raised of $1.4K

Help Me Access Life-Restoring Medical Device

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I am living with two chronic conditions, Ehlers-Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS). Both are lifelong, and there is currently no cure. Because of these conditions, I am disabled and unable to work. One of the biggest challenges I face is the unpredictability of my symptoms, especially with POTS, which can cause sudden drops in blood flow to my head. This often leads to fainting or becoming violently ill with little warning, making daily life and even simple activities feel risky and overwhelming.

There is a device called Lumia 2 that can track blood flow to my head and alert me before I experience dangerous symptoms. With this device, I would be able to stop, sit, or lie down before fainting, allowing me to do things for longer periods and making it safer for me to travel or drive. The early alerts would give me more freedom and confidence, helping me regain some independence and peace of mind. Unfortunately, the Lumia 2 is not covered by insurance, and I do not have the funds to purchase it myself.

I don't like to ask for help, but having access to this medical device would make a world of difference in my life. Your support would allow me to function more safely and independently, and I am deeply grateful for any assistance you can provide. Thank you for considering a donation and for helping me reclaim parts of my life that these conditions have taken away.

For those wondering about the device itself, this is the website: https://lumia2.lumiahealth.com/

Organizer

Jeanette Esparza
Organizer
Marietta, GA
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