Save a child's life!Little Mark wants to live! Diagnosis DMD

The Most Expensive Injection in the World Could Save My Child

My name is Anastasiia. My son has been diagnosed with a rare genetic disease: Duchenne Muscular Dystrophy (DMD).

His name is Mark Romanovych Gladysh, born on February 17, 2022.

Until recently, my child’s condition was incurable. But now, there is a glimmer of hope. On June 22, 2023, the FDA approved the first gene therapy for Duchenne Muscular Dystrophy (DMD).

Duchenne Muscular Dystrophy is a rare genetic disease that causes progressive weakness and loss of skeletal and cardiac muscles.

This condition leads to worsening muscle weakness and premature death during adolescence due to heart problems and respiratory failure.

Elevidys costs $3 million for a single intravenous injection, making it one of the post expensive medications in the world.

Elevidys is the first gene therapy for Duchenne Muscular Dystrophy (DMD). It strengthens muscles by helping the body produce a protein called microdystrophin, which protects muscle cells and prevents their degeneration. ❤️‍

But despite this chance to save our beloved Marchyk, the cost is beyond our family’s means. We are pleading for your help to save our son. Let’s give him the chance to live a happy life