Update: Living with ALS on a single income is becoming increasingly difficult. While this Gofundme started as a means to be able to go out into the world, the truth is its hard just keeping the lights on. While the goal is to still obtain an accessible Van, this Gofundme will also help with my family’s day to day living expenses. Thank you to all who have already donated.

Hello

My name is Maceo Carter and I have been living with ALS since November 8, 2016. During this time, I've moved from Charlotte to Gilbert, AZ to be closer to the Mayo Clinic and treatment. My wife and I have been able to be active in the ALS community in various ways. We are active members of the Many Shades of ALS group on I am ALS. Recently, we were invited to the CZI meeting on racial inequities in science. My four kids and I were part of the first Lou Gehrig's Day with the Arizona Diamondbacks. However, my travel and means of travel have become limited. Through help from different organizations, I have been able to fulfill the wishes of seeing my family. Through these experiences, I have worked diligently with the MDA Association regarding reauthorizing the FAA 2023 in regard to table passengers flying with power wheelchairs. I was also featured in the USA Today article 

https://www.usatoday.com/story/travel/airline-news/2023/08/14/maceo-carter-american-airlines-wheelchair-damage/70570039007/regarding damage to my wheelchair, highlighting the issues of people traveling with power wheelchairs.

Through all of our hard work, we have been able to focus on the good and be in good spirits even while fighting and living with a terminal disease. The hardest adjustment has been the lack of transportation for my family and me. Because I use a power wheelchair and don't have an accessible van, it's hard for me to go out and do normal things. I can't go grocery shopping or attend events with my family. The only time I get out is if I go to the Mayo Clinic for my clinical visits and things associated with ALS. I really would like to be able to get out and discover more of life before I'm unable to.

Any amount that you can contribute would be greatly appreciated. Also. feel free to share my story so that I and my family can continue the work of ALS and the ALS community.