Lyla was born with ADNP Syndrome, a rare genetic disorder that impacts her development, vision, and ability to eat on her own. Since birth, Lyla requires tube feeding due to aspiration; Lyla is 23 months.

She’s been accepted into a 3-week intensive therapy program at the NAPA Center in Charlotte, NC, where children with ADNP make incredible progress through specialized therapies that promote movement, speech, and independence.

We are a tribe that rises together and we are a tribe that sticks together when times are tough. For Lyla and her family, the time is now.

Lyla may never come off of her feeding tube but we are raising $10,000 to help give her the chance to grow and thrive. Every dollar brings her closer!